Assent and self-consent (children and adolescents)

Cohn, J. M., Ginsburg, K. R., Kassam-Adams, N., & Fein, J. A. (2005). Adolescent decisional autonomy regarding participation in an emergency department youth violence interview. The American Journal of Bioethics, 5(5), 70-74.
Assent and self-consent (children and adolescents), Voluntariness and self-efficacyAdolescents, Victims of interpersonal violence, Survey research, Health-care facilities, United StatesQuantitative (QT)

De Bruyn, G., Skhosana, N., Robertson, G., McIntyre, J. A., & Gray, G. E. (2008). Knowledge and attitudes towards HIV vaccines among Soweto adolescents. BMC Research Notes, doi:10.1186/1756-0500-1-76
Assent and self-consent (children and adolescents), Stigma, Voluntariness and self-efficacy, Adolescents, People at risk for HIV, Clinical trials, South Africa, Quantitative (QT)

Diviak, K. R., Curry, S. J., Emery, S. L., & Mermelstein, R. J. (2004). Human participants challenges in youth tobacco cessation research: researchers’ perspectives. Ethics & Behavior, 14(4), 321-334.
Assent and self-consent (children and adolescents), Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Adolescents, InvestigatorsPeople at risk for or with substance abuse addictions, Research staff, Clinical trials,Educational institutions, United States, Qualitative (QL)

Ensign, J., & Ammerman, S. (2008). Ethical issues in research with homeless youths. Journal Of Advanced Nursing, 62(3), 365-372.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Research risks and benefits, Children, Investigators, Research staff, Survey research, Educational institutions, United States, Mixed methods (MM)
*Questionnaire available by request.

Fisher, C. B. (2003). Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research. Ethics and Behavior, 13(4), 302-331.
Assent and self-consent (children and adolescents), Confidentiality and privacy, Informed consent (adults), Research risks and benefits, Parents, Adolescents, Survey researchEducational institutions, United States, Quantitative (QT)

Guadamuz, T. E., Goldsamt, L. A., & Boonmongkon, P. (2014). Consent challenges for participation of young men who have sex with men in HIV prevention research in Thailand. Ethics and Behavior, 25 (2), 180-195.
Assent and self-consent (children and adolescents), Informed consent (adults)Research risks and benefitsStigmaPeople at risk for HIVSexual and gender minoritiesThailandQualitative (QL)

Hamm, M., Scott, S., Klassen, T., Moher, D., & Hartling, L. (2012). Do health care institutions value research? A mixed methods study of barriers and facilitators to methodological rigor in pediatric randomized trials. BMC medical research methodology, 12(1), 158.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Investigators, Research staff, Clinical trials, Health-care facilities,CanadaMixed methods (MM)

Kassam-Adams, N., & Newman, E. (2002). The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P). General Hospital Psychiatry, 24(5), 336-342.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trials,Survey research, Health-care facilities, United States, Qualitative (QL)

Kassam-Adams, N. Newman, E. (2005). Child and parent reactions to participation in clinical research. General Hospital Psychiatry, 27(1), 29-35.
Assent and self-consent (children and adolescents), Research risks and benefits, Research trust and mistrust, Children, Parents, Clinical trials, Survey research, Health-care facilities,United States, Qualitative (QL)

Kimberly, M. B., Hoehn, K. S., Feudtner, C., Nelson, R. M., & Schreiner, M. (2006). Variation in standards of research compensation and child assent practices: a comparison of 69 institutional review board–approved informed permission and assent forms for 3 multicenter pediatric clinical trials. Pediatrics, 117(5), 1706-1711.
Assent and self-consent (children and adolescents), Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB membersChildren, Clinical trials, United States, Quantitative (QT)

Lakes, K. D., Vaughan, E., Jones, M., Burke, W., Baker, D., & Swanson, J. M. (2012). Diverse perceptions of the informed consent process: Implications for the recruitment and participation of diverse communities in the National Childrens Study. American Journal of Community Psychology, 49, 215-232.
Assent and self-consent (children and adolescents), Informed consent (adults), Multicultural competence, Research risks and benefits, Children, Adults (other), United States, Qualitative (QL)

Miller, V. A., Reynolds, W. W., & Nelson, R. M. (2008). Parent–Child Roles in Decision Making About Medical Research. Ethics & Behavior, 18(2-3), 161-181.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trialsHealth-care facilities, United States, Mixed methods (MM)

Minniear, T. D., Gilmore, B., Arnold, S. R., Flynn, P. M., Knapp, K. M., & Gaur, A. H. (2009). Implementation of and barriers to routine HIV screening for adolescents. Pediatrics, 124, 1076-1083.
Assent and self-consent (children and adolescents), Adolescents, Health-care facilities, United States, Quantitative (QT)

O’Lonergan, T. A., & Forster-Harwood, J. E. (2011). Novel approach to parental permission and child assent for research: Improving comprehension. Pediatrics, 127(5), 917-924.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Voluntariness and self-efficacy, Adolescents, Children, Ethics educationMultimedia, Survey research, Health-care facilities, United StatesQuantitative (QT)

Ott, M. A., Alexander, A. B., Lally, M., Steever, J. B., & Zimet, G. D. (2013). Preventive misconception and adolescents’ knowledge about HIV vaccine trials. Journal Of Medical Ethics: Journal Of The Institute Of Medical Ethics, 39(12), 765-771.
Assent and self-consent (children and adolescents), Therapeutic misconceptionAdolescents, People at risk for HIV, People at risk for or with other STIs, Clinical trials,Health-care facilities, United StatesQualitative (QL)

Ott, M. A., Rosenberger, J. G., & Fortenberry, J. D. (2010). Parental permission and perceived research benefits in adolescent STI research.  Journal of empirical research on human research ethics: JERHRE, 5(2), 57-64.
Assent and self-consent (children and adolescents), Informed consent (adults), Research risks and benefits, Adolescents, Parents, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United States, Qualitative (QL)

Reed, J. L., Thistlethwaite, J. M., & Huppert, J. S. (2007). STI research: Recruiting an unbiased sample. Journal of Adolescent Health, 41, 14-18.
Assent and self-consent (children and adolescents), Research risks and benefits, Adolescents, People at risk for HIV, People at risk for or with other STIs, Health-care facilities, United States, Quantitative (QT)

Rojas, N. L., Sherrit, L., Harris, S., & Knight, J. R. (2008). The role of parental consent in adolescent substance use research. Journal of Adolescent Health, 42, 192-197.
Assent and self-consent (children and adolescents), Adolescents, ParentsPeople at risk for or with substance use addictions, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Rongkavilit, C., Naar-King, S., Chuenyam, T., Wang, B., Wright, K., & Phanuphak, P. (2007). Health risk behaviors among HIV-infected youth in Bangkok, Thailand. Journal of Adolescent Health, 40, 358e1-358e8.
Assent and self-consent (children and adolescents), Adolescents, People living with HIV, Health-care facilities, Thailand, Quantitative (QT)

Swenson, R. R., Hadley, W. S., Houck, C. D., Fance, S. K., & Brown, L. K. (2011). Who accepts a rapid HIV antibody test? The role of race/ethnicity and HIV risk behavior among community adolescents. Journal of Adolescent Health, 48, 527-529.
Assent and self-consent (children and adolescents), Adolescents, People at risk for HIV, Survey research, Community organizations, United States, Quantitative (QT)

Thokoane, C. (2014). Ethical challenges for piloting sexual health programs for youth in Hammanskraal, South Africa: bridging the gap between rights and services. Ethics and Behavior, 25 (2), 169-179.
Assent and self-consent (children and adolescents), AdolescentsCommunity-engaged researchHealth-care facilitiesSouth Africa, Qualitative (QL)

Traube, D. E., et al. (2013). African American Children’s Perceptions of HIV-Focused Community-Based Participatory Research. Journal of Empirical Research on Human Research Ethics, 8(1), 79-90.
Assent and self-consent (children and adolescents), Research trust and mistrust, StigmaCommunity-engaged research, Community organizations, United StatesMixed methods (MM)

Wolthers, O. D. (2006). A questionnaire on factors influencing children’s assent and dissent to non-therapeutic research. Journal of medical ethics, 32(5), 292-297.
Assent and self-consent (children and adolescents), Voluntariness and self-efficacyAdolescents, Children, Clinical trials, Educational institutions, DenmarkMixed methods (MM)

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