Confidentiality and privacy

Basta, T. B., Stambaugh, T., & Fisher, C. B. (2014). Efficacy of an educational intervention to increase consent for HIV testing in rural Appalachia. Ethics and Behavior, 25 (2), 129-145.
Confidentiality and privacyInformed consent (adults)Research risks and benefitsPeople at risk for HIVPeople at risk for or with substance use addictionsClinical trials, Health-care facilities, United States 

Broaddus, M. R., Marsch, L. A., & Fisher, C. B. (2015). Risks and benefits of text-message-delivered and small-group-delivered sexual health interventions among African American women in the Midwestern United States. Ethics and Behavior, 25 (2), 146-168.
Confidentiality and privacy, Research risks and benefitsStigmaPeople at risk for HIV, People at risk for or with other STIs, Clinical trialsSurvey researchUnited StatesQuantitative (QT)

Couper, M. P., Singer, E., Conrad, F. G., & Groves, R. M. (2008). Risk of disclosure, perceptions of risk, and concerns about privacy and confidentiality as factors in survey participation. Journal of official statistics, 24(2), 255-275.
Confidentiality and privacy, Research risks and benefits, Research trust and mistrust, Adults (other), Survey research, United StatesQuantitative (QT)

Couper, M. P., & Singer, E. (2009). The role of numeracy in informed consent for surveys. Journal of empirical research on human research ethics: JERHRE,4(4), 17.
Confidentiality and privacy, Informed consent (adults), Adults (other), Online and social media research, Online web panel, United StatesQuantitative (QT)

Eldridge, G. D., Robinson, R., Corey, S., Brems, C., & Johnson, M. E. (2012). Ethical challenges in conducting HIV/AIDS research in correctional settings. Journal of Correctional Health Care, 18(4), 309-318.
Confidentiality and privacy, Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Research staff, Incarcerated, detained, or previously incarcerated individuals, People at risk for HIV, Prisons, United States, Qualitative (QL)

Fisher, C. B. (2011). Addiction research ethics and the Belmont principles: Do drug users have a different moral voice? Substance Use and Misuse, 46 (6), 728-741.
Confidentiality and privacyResearch misconductPeople at risk for or with other substance abuse addictionsPeople who inject drugsSurvey researchCommunity organizations, United StatesMixed methods (MM)

Fisher, C. B. (2003). Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research. Ethics and Behavior, 13(4), 302-331.
Assent and self-consent (children and adolescents), Confidentiality and privacy, Informed consent (adults), Research risks and benefits, Parents, Adolescents, Survey researchEducational institutions, United StatesQuantitative (QT)

Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical care, 1048-1053.
Confidentiality and privacy, Research trust and mistrust, Voluntariness and self-efficacy,Adults (other), Survey research, Health-care facilities, United StatesQuantitative (QT)

Kyaddondo, D., Wanyenze, R., Kinsman, J., & Hardon, A. (2012). Home-based HIV counseling and testing: client experiences and perceptions in Eastern Uganda. BMC Public Health, 12966.
Confidentiality and privacy, Informed consent (adults)People at risk for HIV, People at risk for or with other STIsCommunity-engaged researchSurvey researchSouth AfricaMixed Methods (MM)

Madhivanan, P., Krupp, K., Kulkarni, V., Kulkarni, S., Vaidya, N., Shaheen, R. Philpott, S. & Fisher, C. B. (2014). HIV testing among pregnant women living with HIV in India: are private healthcare providers routinely violating women’s human rights? BMC International Health and Human Rights, 14(7).
Confidentiality and privacy, Informed consent (adults), People living with HIV, Clinical trials, Community organizations, Health-care facilities, India, Qualitative (QL)

Oliver, J. M., Slashinski, M. J., Wang, T., Kelly, P. A., Hilsenbeck, S. G., & McGuire, A. L. (2011). Balancing the risks and benefits of genomic data sharing: genome research participants’ perspectives. Public Health Genomics, 15(2), 106-114.
Confidentiality and privacy, Informed consent (adults), Research risks and benefits,Research trust and mistrust, Adults (other), Parents, Clinical trials, Health-care facilities, United StatesMixed methods (MM)

Reed, E., Khoshnood, K., Blankenship, K. M., & Fisher, C. B. (2014). Confidentiality, Privacy, and Respect: Experiences of Female Sex Workers Participating in HIV Research in Andhra Pradesh, India. Journal Of Empirical Research On Human Research Ethics, 9(1), 19-28.
Confidentiality and privacy, Stigma, People involved in sex work, Community organizations, India, Qualitative (QL)

Rubright, J. D., Cary, M. S., Karlawish, J. H., & Kim, S. Y. (2011). Measuring how people view biomedical research: Reliability and validity analysis of the Research Attitudes Questionnaire. Journal of Empirical Research on Human Research Ethics, 6(1), 63-68.
Confidentiality and privacy, Research trust and mistrust, Stigma, Adults (other), Online and social media research, Online web panel, United StatesQuantitative (QT)

Senn, C. Y., & Desmarais, S. (2006). A new wrinkle on a old concern: Are the new ethics review requirements for explicit warnings in consent forms affecting the results of sexuality. Canadian Journal of Human Sexuality.
Confidentiality and privacy, Informed consent (adults), College students and young adultsClinical trials, Survey research, Educational institutionsCanadaMixed methods (MM)

Teti, M., Murray, C., Johnson, L., & Binson, D. (2012). Photovoice as a community-based participatory research method among women living with HIV/AIDS: ethical opportunities and challenges. Journal Of Empirical Research On Human Research Ethics: JERHRE, 7(4), 34-43.
Confidentiality and privacy, People living with HIV, Community-engaged researchCommunity organization, United States, Qualitative (QL)

Willison, D. J., Keshavjee, K., Nair, K., Goldsmith, C., & Holbrook, A. M. (2003). Patients’ consent preferences for research uses of information in electronic medical records: interview and survey data. Bmj, 326(7385), 373.
Confidentiality and privacy, Informed consent (adults), Adult (other), Survey researchHealth-care facilities, CanadaMixed methods (MM)

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