Abdool Karim, Q., Abdool Karim, S. S., Coovadia, H. M., & Susser, M. (1998). Informed consent for HIV testing in a South
African hospital: Is it truly informed and truly voluntary?. American Journal of Public Health, 88(4), 637-640.
Informed consent (adults), Voluntariness and self-efficacy, Adults (other), People living with HIV, People at risk for or with other STIs, Survey research, Health-care facilities, South Africa, Quantitative (QT)
Appelbaum, P. S., Lidz, C. W., & Klitzman, R. (2009). Voluntariness of consent to research: A preliminary empirical investigation. IRB: Ethics & Human Research, Nov. –Dec. 2009, 10-18.
Informed consent (adults), Voluntariness and self-efficacy, United States
Arscott, K., Dagnan, D., & Kroese, B. S. (1998). Consent to psychological research by people with an intellectual disability. Journal of Applied Research in Intellectual Disabilities, 11(1), 77-83.
Informed consent (adults), Voluntariness and self-efficacy, Research risks and benefits,Adults with neurological disorders, Clinical trials, Community organizations, Educational institutions, England, Quantitative (QT)
Bieschke, K. J., Bishop, R. M., & Garcia, V. L. (1996). The utility of the research self-efficacy scale. Journal of Career Assessment, 4, 59-75.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Ethics education, Educational institutions, United States, Quantitative (QT)
Cohn, J. M., Ginsburg, K. R., Kassam-Adams, N., & Fein, J. A. (2005). Adolescent decisional autonomy regarding participation in an emergency department youth violence interview. The American Journal of Bioethics, 5(5), 70-74.
Assent and self-consent (children and adolescents), Voluntariness and self-efficacy,Adolescents, Victims of interpersonal violence, Survey research, Health-care facilities, United States, Quantitative (QT)
De Bruyn, G., Skhosana, N., Robertson, G., McIntyre, J. A., & Gray, G. E. (2008). Knowledge and attitudes towards HIV vaccines among Soweto adolescents. BMC Research Notes, doi:10.1186/1756-0500-1-76
Assent and self-consent (children and adolescents), Stigma, Voluntariness and self-efficacy, Adolescents, People at risk for HIV, Clinical trials, South Africa, Quantitative (QT)
Festinger, D. S., Arabia, P. L., Croft, J. R., Dugosh, K. L., & Marlowe, D. B. (2008). Higher magnitude cash payments improve research follow-up rates without increasing drug use or perceived coercion. Drug Alcohol Dependence, 96 (1-2), 128-135.
Research risks and benefits, Voluntariness and self-efficacy, People at risk for HIV, People at risk for or with other STIs, People at risk for or with other substance abuse addictions, People who inject drugs, Clinical trials, Health-care facilities, United States, Quantitative (QT)
Flynn, K. E., Weinfurt, K. P., Seils, D. M., Lin, L., Burnett, C. B., Schulman, K. A., & Meropol, N. J. (2008). Decisional conflict among patients who accept or decline participation in phase I oncology studies. Journal of empirical research on human research ethics: JERHRE, 3(3), 69-77.
Research risks and benefits, Voluntariness and self-efficacy, Adults with other health problems, Clinical trials, Health-care facilities, United States, Quantitative (QT)
Forester, M., Kahn, J. H., & Hesson-McInnis, M. S. (2004). Factor structures of three measures of research self-efficacy. Journal of Career Assessment,12(1), 3-16.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Investigators, Research staff, Ethics education, Educational institutions, United States, Quantitative (QT)
Forman, R. F., Bovasso, G., Clark, C., McNicholas, L., Royer-Malvestuto, C., Weinstein, S., & Woody, G. (2002). Staff beliefs about drug abuse clinical trials. Journal of Substance Abuse Treatment, 23 (1), 55-60.
Therapeutic misconception, Voluntariness and self-efficacy, Adults (other), Clinical trials, Ethics education, Health-care facilities, United States, Quantitative (QT)
Fuchs, J., Durham, M., McLellan-Lemal, E., Vittinghoff, E., Colfax, G., Gurwith, M., & Buchbinder S. (2007). Negative social impacts among volunteers in an HIV vaccine efficacy trial. Journal of Acquired Immune Deficiency Syndromes, I, 362-368.
Research risks and benefits, Stigma, People at risk for HIV, Clinical trials, Health-care facilities, United States, Quantitative (QT)
Garber, M., Hanusa, B. H., Switzer, G. E., Mellors, J., & Arnold, R. M. (2007). HIV-infected African Americans are willing to participate in HIV treatment trials. Journal of General Internal Medicine, 22(1), 17-42.
Multicultural competence, Voluntariness and self-efficacy, People living with HIV, Clinical trials, Health-care facilities, United States, Quantitative (QT)
Groves, A. K., Maman, S., Msomi, S., Makhanya, N., & Moodley, D. (2010). The complexity of consent: Women’s experiences testing for HIV at an antenatal clinical in Durban, South Africa. AIDS Care, 22(5), 538-544.
Informed consent (adults), Voluntariness and self-efficacy, People at risk for HIV, Health-care facilities, South Africa, Qualitative (QL)
Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical care, 1048-1053.
Confidentiality and privacy, Research trust and mistrust, Voluntariness and self-efficacy,Adults (other), Survey research, Health-care facilities, United States, Quantitative (QT)
Hanson, B. L., Faulkner, S. A., Brems, C., Corey, S. L., Eldridge, G. D., Johnson, M. E. (2015). Key stakeholders’ perceptions of motivators for research participation among individuals who are incarcerated. JERHRE, 10 (4), 350-370.
Investigator practices and perspectives, IRB practices and perspectives, Voluntariness and self-efficacy, Incarcerated, detained, or previously incarcerated individuals, Investigators, IRB members, Community-engaged research, Prisons, United States, Qualitative (QL)
Lynöe, N., Sandlund, M., Dahlqvist, G., & Jacobsson, L. (1991). Informed consent: study of quality of information given to participants in a clinical trial. BMJ: British Medical Journal, 303(6803), 610-613.
Informed consent (adults), Voluntariness and self-efficacy, Adults with other health problems, Clinical trials, Health-care facilities, Sweden, Quantitative (QT)
Meyers, K., Metzger, D. S., Navaline, H., Woody, G. E., & McLellan, A. T. (1994). HIV vaccine trials: Will intravenous drug users enroll? American Journal of Public Health, 84(5), 761-766.
Voluntariness and self-efficacy, People at risk for HIV, People who inject drugs, Clinical trials, Health-care facilities, United States, Quantitative (QT)
Miller, V. A., Reynolds, W. W., Ittenbach, R. F., Luce, M. F., Beauchamp, T. L., & Nelson, R. M. (2009). Challenges in measuring a new construct: Perception of voluntariness for research and treatment decision making. Journal of empirical research on human research ethics: JERHRE, 4(3), 21-31.
Voluntariness and self-efficacy, Clinical Trials, Health-care facilities, United States, Qualitative (QL)
Obermeyer, C., Verhulst, C., & Asmar, K. (2014). Could you have said no? A mixed-methods investigation of consent to HIV tests in four African countries. Journal Of The International AIDS Society, 1718898.
Informed consent (adults), Voluntariness and self-efficacy, People at risk for HIV, People at risk for or with other STIs, Survey research, Health-care facilities, South Africa, Mixed Methods (MM)
O’Lonergan, T. A., & Forster-Harwood, J. E. (2011). Novel approach to parental permission and child assent for research: Improving comprehension. Pediatrics, 127(5), 917-924.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Voluntariness and self-efficacy, Adolescents, Children, Ethics education, Multimedia, Survey research, Health-care facilities, United States, Quantitative (QT)
Palmer, B. W., Cassidy, E. L., Dunn, L. B., Spira, A. P., & Sheikh, J. I. (2008). Effective use of consent forms and interactive questions in the consent process. IRB: Ethics and Human Research, 30(2), 8-12.
Informed consent (adults), Voluntariness and self-efficacy, Adults with other health problems, Clinical trials, Health-care facilities, United States, Qualitative (QL)
Phillips, J. C., & Russell, R. K. (1994). Research self-efficacy, the research training environment, and research productivity among graduate students in counseling psychology. The Counseling Psychologist, 22, 628-641.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Investigators, Ethics education, Survey research, Educational institutions, United States, Quantitative (QT)
Rajabiun, S., Mallinson, R. K., McCoy, K., Coleman, S., Drainoni, M., Rebholz, C., & Holbert, T. (2007). Getting me back on track: The role of outreach interventions in engaging and retaining people living with HIV/AIDS in medical care. AIDS Patient Care and STDs, 21(Supp. 1), S20-S29.
Clinical efficacy, Voluntariness and self-efficacy, People living with HIV, Health-care facilities, United States, Qualitative (QL)
Slomka, J., Ratliff, E. A., McCurdy, S. A., Timpson, S., & Williams, M.L. (2008). Decisions to participate in research: Views of underserved minority drug users with or at risk for HIV. AIDS Care, 20(10), 1224-1232.
Research risks and benefits, Voluntariness and self-efficacy, People at risk for HIV, People who inject drugs, Clinical trials, Health-care facilities, United States, Qualitative (QL)
Wolthers, O. D. (2006). A questionnaire on factors influencing children’s assent and dissent to non-therapeutic research. Journal of medical ethics, 32(5), 292-297.
Assent and self-consent (children and adolescents), Voluntariness and self-efficacy,Adolescents, Children, Clinical trials, Educational institutions, Denmark, Mixed methods (MM)
Yin, L., Zhang, Y., Qian, H., Rui, B., Zhang, L., Zhu, J., Shao, Y. (2008). Willingness of Chinese injection drug users to participate in HIV vaccine trials. Vaccine, 26, 762-768.
Voluntariness and self-efficacy, People at risk for HIV, People who inject drugs, Clinical trials, Neighborhoods, China, Quantitative (QT)
