Community organizations

Agnarson, A. M., et al. (2013). Antiretroviral Treatment Knowledge and Stigma – Implications for Programs and HIV Treatment Interventions in Rural Tanzanian Populations. PLoS ONE 8(1): e53993.
Informed consent (adults), Stigma, Adults (other), People at risk for HIV, People at risk for or with other STIs, People living with HIV, Survey research, Community-engaged researchCommunity organizations, TanzaniaQuantitative (QT)

Arscott, K., Dagnan, D., & Kroese, B. S. (1998). Consent to psychological research by people with an intellectual disability. Journal of Applied Research in Intellectual Disabilities, 11(1), 77-83.
Informed consent (adults), Voluntariness and self-efficacy, Research risks and benefits,Adults with neurological disorders, Clinical trials, Community organizations, Educational institutions, EnglandQuantitative (QT)

Bell, K., & Salmon, A. (2011). What women who use drugs have to say about ethical research: findings of an exploratory qualitative study.  Journal of empirical research on human research ethics, 6, 84-98.
Research risks and benefitsResearch trust and mistrustPeople at risk for or with substance abuse addictionsPeople who inject drugsClinical trials, Survey researchEthics educationCommunity organizationsCanadaQualitative (QL)

Brody, H., Croisant, S. A., Crowder, J. W., & Banda, J. P. (2015). Ethical issues in patient-centered outcomes research and comparative effectiveness research: a pilot study of community dialogue. Journal of Empirical Research on Human Research Ethics, 10 (1), 22-30.
Multicultural competenceAdults (other)Community organizationsUnited StatesQualitative (QL)

Brooks, R. A., Newman, P. A., Duan, N., & Ortiz, D. J. (2007). HIV vaccine trial preparedness among Spanish-speaking Latinos in the US. AIDS Care, 19(1), 52-58.
Research risks and benefits, Research trust and mistrust, Stigma, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United States, Qualitative (QL)

Brown, E. J. & Hill, M. A. (2005). Perceptions of HIV risks and prevention strategies by rural and small city African Americans who use cocaine: Views from the inside. Issues in Mental Health Nursing, 26, 359-377.
Multicultural competence, Research risks and benefits, People at risk for HIV, People at risk for or with substance use addictions, Community-engaged research, Community organizations, Health-care facilities, United States, Qualitative (QL)

Chiu, C. J., Menacho, L., & Young, S. D. (2014). The association between age and ethics-related issues in using social media for HIV prevention in Peru. Ethics and Behavior, 26 (2), 99-109.
Clinical efficacy, Research risks and benefitsPeople at risk for HIV, Online and social media research, Survey researchCommunity organizationsPeru

Eisingerich, A. B., et al. (2012). Attitudes and Acceptance of Oral and Parenteral HIV Preexposure Prophylaxis among Potential User Groups: A Multinational Study. PLoS ONE 7(1): e28238.
Research risks and benefits, Stigma, Adults (other), People at risk for HIV, People at risk for or with other STIs, People involved in sex work, People who inject drugs, Sexual and gender minorities, Community-engaged research, Community organizations, Health-care facilities, Botswana, India, Kenya, Peru, South Africa, Uganda, UkraineQuantitative (QT)

Fisher, C. B. (2011). Addiction research ethics and the Belmont principles: Do drug users have a different moral voice? Substance Use and Misuse, 46 (6), 728-741.
Confidentiality and privacyResearch misconductPeople at risk for or with other substance abuse addictionsPeople who inject drugsSurvey researchCommunity organizations, United StatesMixed methods (MM)

Fisher, C., Cea, C., Davidson, P., & Fried, A. (2006). Capacity of persons with mental retardation to consent to participate in randomized clinical trials. American Journal of Psychiatry, 163(10), 1813-1820.
Informed consent (adults), Adults with neurological disorders, Clinical trials, Community organizations, United StatesQuantitative (QT)

Fry, C. & Dwyer, R. (2001). For love or money? An exploratory study of why injecting drug users participate in research. Addiction, 96, 1319-1325.
Research risks and benefitsPeople at risk for or with other substance abuse addictionsPeople who inject drugsSurvey researchCommunity organizations, Australia, Mixed methods (MM)

Kiluk, B. D., Nich, C., & Carroll, K. M. (2010).Neurocognitive Indicators Predict Results of an Informed-Consent Quiz Among Substance-Dependent Treatment Seekers Entering a Randomized Clinical Trial. Journal of studies on alcohol and drugs, 71(5), 704-712.
Informed consent (adults), People at risk for or with substance use addictions, Clinical trials, Community organizations, United StatesQuantitative (QT)

Kostick, K. M., Weeks, M., & Mosher, H. (2014). Participant and staff experiences in a peed-delivered HIV prevention with injection drug users. JERHRE, 9 (1), 6-18.
Clinical efficacyInvestigator practices and perspectives, Research misconductInvestigatorsPeople at risk for HIVPeople who inject drugsCommunity-engaged researchCommunity organizationsUnited StatesQualitative (QL)

Oransky, M., Fisher, C. B., Mahadevan, M., & Singer, M. (2009). Barriers and opportunities for recruitment for nonintervention studies on HIV risk: Perspectives of street drug users. Substance Use& Misuse, 44, 1642-1659.
Research risks and benefitsResearch trust and mistrust, StigmaPeople at risk for HIV, People who inject drugsCommunity organizationsUnited StatesQualitative (QL)

Ott, M. A., Rosenberger, J. G., & Fortenberry, J. D. (2010). Parental permission and perceived research benefits in adolescent STI research.  Journal of empirical research on human research ethics: JERHRE, 5(2), 57-64.
Assent and self-consent (children and adolescents), Informed consent (adults), Research risks and benefits, Adolescents, Parents, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United StatesQualitative (QL)

Pearson, C. R., Parker, M., Fisher, C. B., & Moreno, C. (2014). Capacity Building from the Inside Out: Development and Evaluation of a CITI Ethics Certification Training Module for American Indian and Alaska Native Community Researchers. Journal Of Empirical Research On Human Research Ethics, 9(1), 46-57.
Multicultural competence, Research risks and benefits, Adults (other), Community-engaged research, Ethics education, Community organizations, United States, Mixed Methods (MM)

Quirk, M. E., Godkin, M. A., & Schwenzfeier, E. (1993). Evaluation of two AIDS prevention interventions for inner-city adolescent and young adult women. American journal of preventive medicine.
Clinical efficacy, Adolescents, People at risk for HIV, People at risk for or with other STIs,Community-engaged research, Multimedia, Community organizations, Health-care facilities,United StatesMixed methods (MM)

Reed, E., Khoshnood, K., Blankenship, K. M., & Fisher, C. B. (2014). Confidentiality, Privacy, and Respect: Experiences of Female Sex Workers Participating in HIV Research in Andhra Pradesh, India. Journal Of Empirical Research On Human Research Ethics, 9(1), 19-28.
Confidentiality and privacy, Stigma, People involved in sex work, Community organizations, India, Qualitative (QL)

Slomka, J., Ratliff, E. A., McCurdy, S., Timpson, S., & Williams, M. L. (2008). Perceptions of Risk in Research Participation Among Underserved Minority Drug Users. Substance Use & Misuse, 43(11), 1643-1655.
Research risks and benefits, People at risk for HIV, People who inject drugs, Clinical trials,Survey research, Community organizations, United States, Qualitative (QL)

Swenson, R. R., Hadley, W. S., Houck, C. D., Fance, S. K., & Brown, L. K. (2011). Who accepts a rapid HIV antibody test? The role of race/ethnicity and HIV risk behavior among community adolescents. Journal of Adolescent Health, 48, 527-529.
Assent and self-consent (children and adolescents), Adolescents, People at risk for HIV, Survey research, Community organizations, United States, Quantitative (QT)

Teti, M., Murray, C., Johnson, L., & Binson, D. (2012). Photovoice as a community-based participatory research method among women living with HIV/AIDS: ethical opportunities and challenges. Journal Of Empirical Research On Human Research Ethics: JERHRE, 7(4), 34-43.
Confidentiality and privacy, People living with HIV, Community-engaged research,Community organizations, United States, Qualitative (QL)

Traube, D. E., et al. (2013). African American Children’s Perceptions of HIV-Focused Community-Based Participatory Research. Journal of Empirical Research on Human Research Ethics, 8(1), 79-90.
Assent and self-consent (children and adolescents), Research trust and mistrust, Stigma,Community-engaged research, Community organizations, United StatesMixed methods (MM)

Traube, D. E., et al. (2013). African American Children’s Perceptions of HIV-Focused Community-Based Participatory Research. Journal of Empirical Research on Human Research Ethics, 8(1), 79-90.
Assent and self-consent (children and adolescents), Research trust and mistrust, Stigma,Community-engaged research, Community organizations, United StatesMixed methods (MM)

Vallely, A., Lees, S., Shagi, C., Kasindi, S., Soteli, S., Kavit, N., Hayes, R. J. (2010). How informed is consent in vulnerable populations? Experience using a continuous consent process during the MDP301 vaginal microbicide trial in Mwanza, Tanzania. BMC Medical Ethics, 11(10), doi: 10.1186/1472-6939-11-10.
Informed consent (adults), People at risk for HIV, Clinical trials, Community organizations, Tanzania, Qualitative (QL)

Vreeman, R., Kamaara, E., Kamanda, A., Ayuku, D., Nyandiko, W., Atwoli, L., & … Braitstein, P. (2012). A qualitative study using traditional community assemblies to investigate community perspectives on informed consent and research participation in western Kenya. BMC Medical Ethics, 1323.
Informed consent (adults), Adults (other), Community-engaged research, Community organizations, Kenya, Qualitative (QL)

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