Ashcraft, M. H., & Krause, J. A. (2007). Social and behavioral researchers’ experiences with their IRBs. Ethics & Behavior, 17(1), 1-17.
Investigator practices and perspectives, IRB practices and perspectives, Investigators,Research staff, Survey research, Educational institutions, United States, Mixed methods (MM)
Diviak, K. R., Curry, S. J., Emery, S. L., & Mermelstein, R. J. (2004). Human participants challenges in youth tobacco cessation research: researchers’ perspectives. Ethics & Behavior, 14(4), 321-334.
Assent and self-consent (children and adolescents), Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Adolescents, Investigators,People at risk for or with substance abuse addictions, Research staff, Clinical trials,Educational institutions, United States, Qualitative (QL)
Eldridge, G. D., Robinson, R., Corey, S., Brems, C., & Johnson, M. E. (2012). Ethical challenges in conducting HIV/AIDS research in correctional settings. Journal of Correctional Health Care, 18(4), 309-318.
Confidentiality and privacy, Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Research staff, Incarcerated, detained, or previously incarcerated individuals, People at risk for HIV, Prisons, United States, Qualitative (QL)
Ensign, J., & Ammerman, S. (2008). Ethical issues in research with homeless youths. Journal Of Advanced Nursing, 62(3), 365-372.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Research risks and benefits, Children, Investigators, Research staff, Survey research, Educational institutions, United States, Mixed methods (MM)
*Questionnaire available by request.
Fischer, B. A., & George, P. (2010). The investigator and the IRB: A survey of depression and schizophrenia researchers. Schizophrenia research, 122(1-3), 206.
Investigator practices and perspectives, IRB practices and perspectives, Adults with mental health disorders, Adults with neurological disorders, Investigators, IRB members, Research staff, Clinical trials, Educational institutions, United States, Quantitative (QT)
Forester, M., Kahn, J. H., & Hesson-McInnis, M. S. (2004). Factor structures of three measures of research self-efficacy. Journal of Career Assessment,12(1), 3-16.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Investigators, Research staff, Ethics education, Educational institutions, United States, Quantitative (QT)
Haire, B. (2013). Ethics of Medical Care and Clinical Research: A Qualitative Study of Principal Investigators in Biomedical HIV Prevention Research. Journal Of Medical Ethics: The Journal Of The Institute Of Medical Ethics, 39(4), 231-235.
Investigator practices and perspectives, Investigators, Research staff, Clinical trials, Health-care facilities, Australia, Qualitative (QL)
Hamm, M., Scott, S., Klassen, T., Moher, D., & Hartling, L. (2012). Do health care institutions value research? A mixed methods study of barriers and facilitators to methodological rigor in pediatric randomized trials. BMC medical research methodology, 12(1), 158.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Investigators, Research staff, Clinical trials, Health-care facilities, Canada, Mixed methods (MM)
Hanson, B. L., Faulkner, S. A., Brems, C., Corey, S. L., Eldridge, G. D., Johnson, M. E. (2015). Key stakeholders’ perceptions of motivators for research participation among individuals who are incarcerated. JERHRE, 10 (4), 350-370.
Investigator practices and perspectives, IRB practices and perspectives, Voluntariness and self-efficacy, Incarcerated, detained, or previously incarcerated individuals, Investigators, IRB members, Community-engaged research, Prisons, United States, Qualitative (QL)
Keith-Spiegel, P. & Koocher, G. P. (2005). Institutional Review Board Researcher Assessment Tool (IRB-RAT).
Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Research staff, United States, Quantitative (QT)
Kimberly, M. B., Hoehn, K. S., Feudtner, C., Nelson, R. M., & Schreiner, M. (2006). Variation in standards of research compensation and child assent practices: a comparison of 69 institutional review board–approved informed permission and assent forms for 3 multicenter pediatric clinical trials. Pediatrics, 117(5), 1706-1711.
Assent and self-consent (children and adolescents), Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members,Children, Clinical trials, United States, Quantitative (QT)
Kokolo, M. B., et al. (2011). HIV Pre-Exposure Prophylaxis (PrEP) – A Quantitative Ethics Appraisal. PLoS ONE 6(8): e22497.
Informed consent (adults), Investigator practices and perspectives, Research risks and benefits, Investigators, Research staff, Clinical trials, Health-care facilities, Canada, Quantitative (QT)
Kostick, K. M., Weeks, M., & Mosher, H. (2014). Participant and staff experiences in a peed-delivered HIV prevention with injection drug users. JERHRE, 9 (1), 6-18.
Clinical efficacy, Investigator practices and perspectives, Research misconduct, Investigators, People at risk for HIV, People who inject drugs, Community-engaged research, Community organizations, United States, Qualitative (QL)
Lairumbi, G. M., Michael, P., Fitzpatrick, R., & English, M. C. (2012). Forms of benefit sharing in global health research undertaken in resource poor settings: A qualitative study of stakeholders views in Kenya. Philosophy, Ethics, and Humanities in Medicine, 7(7).
Research risks and benefits, Adults (other), Community Advisory Board, Investigators, IRB members, Policy makers, Clinical trials, Health-care facilities, South Africa, Qualitative (QL)
Phillips, J. C., & Russell, R. K. (1994). Research self-efficacy, the research training environment, and research productivity among graduate students in counseling psychology. The Counseling Psychologist, 22, 628-641.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Investigators, Ethics education, Survey research, Educational institutions, United States, Quantitative (QT)
Ripley, E., Macrina, F., Markowitz, M., & Gennings, C. (2010). Why do we pay? A national survey of investigators and IRB chairpersons. Journal of empirical research on human research ethics: JERHRE, 5(3), 43.
Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Clinical trials, Educational institutions, United States, Quantitative (QT)
Sullivan, S., Aalborg, A., Basagoitia, A., Cortes, J., Lanza, O., & Schwind, J. S. (2015). Exploring perceptions and experiences of Bolivian health researchers with research ethics. Journal of Empirical Research on Human Research Ethics, 10 (2), 185-195.
Investigator practices and perspectives, Investigators, Research staff, Ethics education, Educational institutions, Bolivia, Quantitative (QT)
Yessis, J. L., et al (2012). Development of a Research Participants’ Perception Survey to Improve Clinical Research. CTS Journal, 5(6): 452-460.
Informed consent (adults), Investigator practices and perspectives, Investigators, Adults (other), Clinical trials, Educational institutions, Canada, Quantitative (QT)
