Parents

Fisher, C. B. (2003). Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research. Ethics and Behavior, 13(4), 302-331.
Assent and self-consent (children and adolescents), Confidentiality and privacy, Informed consent (adults), Research risks and benefits, Parents, Adolescents, Survey researchEducational institutions, United StatesQuantitative (QT)

Hazen, R. A., Eder, M., Drotar, D., Zyzanski, S., Reynolds, A. E., Reynolds, C. P., …& Noll, R. B. (2010). A feasibility trial of a video intervention to improve informed consent for parents of children with leukemia. Pediatric blood & cancer, 55(1), 113-118.
Informed consent (adults), Parents, Clinical trials, Health-care facilities, United StatesQuantitative (QT)

Kassam-Adams, N., & Newman, E. (2002). The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P). General Hospital Psychiatry, 24(5), 336-342.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trials,Survey research, Health-care facilities, United StatesQualitative (QL)

Kassam-Adams, N. Newman, E. (2005). Child and parent reactions to participation in clinical research. General Hospital Psychiatry, 27(1), 29-35.
Assent and self-consent (children and adolescents), Research risks and benefits, Research trust and mistrust, Children, Parents, Clinical trials, Survey research, Health-care facilitiesUnited States, Qualitative (QL)

Miller, V. A., Reynolds, W. W., & Nelson, R. M. (2008). Parent–Child Roles in Decision Making About Medical Research. Ethics & Behavior, 18(2-3), 161-181.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trials,Health-care facilities, United StatesMixed methods (MM)

Oliver, J. M., Slashinski, M. J., Wang, T., Kelly, P. A., Hilsenbeck, S. G., & McGuire, A. L. (2011). Balancing the risks and benefits of genomic data sharing: genome research participants’ perspectives. Public Health Genomics, 15(2), 106-114.
Confidentiality and privacy, Informed consent (adults), Research risks and benefits,Research trust and mistrust, Adults (other), Parents, Clinical trials, Health-care facilities, United StatesMixed methods (MM)

Ott, M. A., Rosenberger, J. G., & Fortenberry, J. D. (2010). Parental permission and perceived research benefits in adolescent STI research.  Journal of empirical research on human research ethics: JERHRE, 5(2), 57-64.
Assent and self-consent (children and adolescents), Informed consent (adults), Research risks and benefits, Adolescents, Parents, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United StatesQualitative (QL)

Rojas, N. L., Sherrit, L., Harris, S., & Knight, J. R. (2008). The role of parental consent in adolescent substance use research. Journal of Adolescent Health, 42, 192-197.
Assent and self-consent (children and adolescents), Adolescents, ParentsPeople at risk for or with substance use addictions, Clinical trials, Health-care facilities, United States, Quantitative (QT)

 

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