People at risk for HIV

Agnarson, A. M., et al. (2013). Antiretroviral Treatment Knowledge and Stigma – Implications for Programs and HIV Treatment Interventions in Rural Tanzanian Populations. PLoS ONE 8(1): e53993.
Informed consent (adults), Stigma, Adults (other), People at risk for HIV, People at risk for or with other STIs, People living with HIV, Survey research, Community-engaged researchCommunity organizations, TanzaniaQuantitative (QT)

Basta, T. B., Stambaugh, T., & Fisher, C. B. (2014). Efficacy of an educational intervention to increase consent for HIV testing in rural Appalachia. Ethics and Behavior, 25 (2), 129-145.
Confidentiality and privacyInformed consent (adults)Research risks and benefitsPeople at risk for HIVPeople at risk for or with substance use addictionsClinical trials, Health-care facilities, United States 

Broaddus, M. R., Marsch, L. A., & Fisher, C. B. (2015). Risks and benefits of text-message-delivered and small-group-delivered sexual health interventions among African American women in the Midwestern United States. Ethics and Behavior, 25 (2), 146-168.
Confidentiality and privacy, Research risks and benefitsStigmaPeople at risk for HIV, People at risk for or with other STIs, Clinical trialsSurvey researchUnited StatesQuantitative (QT)

Brooks, R. A., Newman, P. A., Duan, N., & Ortiz, D. J. (2007). HIV vaccine trial preparedness among Spanish-speaking Latinos in the US. AIDS Care, 19(1), 52-58.
Research risks and benefits, Research trust and mistrust, Stigma, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United States, Qualitative (QL)

Brown, E. J. & Hill, M. A. (2005). Perceptions of HIV risks and prevention strategies by rural and small city African Americans who use cocaine: Views from the inside. Issues in Mental Health Nursing, 26, 359-377.
Multicultural competence, Research risks and benefits, People at risk for HIV, People at risk for or with substance use addictions, Community-engaged research, Community organizations, Health-care facilities, United States, Qualitative (QL)

Calsyn, D. A., Burlew, A., Hatch-Maillette, M. A., Wilson, J., Beadnell, B., & Wright, L. (2012). Real men are safe-culturally adapted: Utilizing the Delphi process to revise Real Men Are Safe for an ethically diverse group of men in substance abuse treatment. AIDS Education And Prevention, 24(2), 117-131.
Multicultural competence, People at risk for HIV, People at risk for or with other STIs,Clinical Trials, United States, Quantitative (QT)

Chiu, C. J., Menacho, L., & Young, S. D. (2014). The association between age and ethics-related issues in using social media for HIV prevention in Peru. Ethics and Behavior, 26 (2), 99-109.
Clinical efficacy, Research risks and benefitsPeople at risk for HIV, Online and social media research, Survey researchCommunity organizationsPeru

De Bruyn, G., Skhosana, N., Robertson, G., McIntyre, J. A., & Gray, G. E. (2008). Knowledge and attitudes towards HIV vaccines among Soweto adolescents. BMC Research Notes, doi:10.1186/1756-0500-1-76
Assent and self-consent (children and adolescents), Stigma, Voluntariness and self-efficacy, Adolescents, People at risk for HIV, Clinical trials, South Africa, Quantitative (QT)

DuBois, J. M., O’Leary, C. C., & Cottler, L. B. (2009).The attitudes of females in drug court toward additional safeguards in HIV prevention research. Prevention Science, 10(4), 345-352.
Informed consent (adults), Research risks and benefits, Adults (other), Incarcerated, detained, or previously incarcerated individuals, People at risk for HIV, People at risk for or with other STIs, People at risk for or with other substance abuse addictions, People who inject drugs, Community-engaged research, Prisons, United StatesQualitative (QL)

Eisingerich, A. B., et al. (2012). Attitudes and Acceptance of Oral and Parenteral HIV Preexposure Prophylaxis among Potential User Groups: A Multinational Study. PLoS ONE 7(1): e28238.
Research risks and benefits, Stigma, Adults (other), People at risk for HIV, People at risk for or with other STIs, People involved in sex work, People who inject drugs, Sexual and gender minorities, Community-engaged research, Community organizations, Health-care facilities, Botswana, India, Kenya, Peru, South Africa, Uganda, UkraineQuantitative (QT)

Eldridge, G. D., Robinson, R., Corey, S., Brems, C., & Johnson, M. E. (2012). Ethical challenges in conducting HIV/AIDS research in correctional settings. Journal of Correctional Health Care, 18(4), 309-318.
Confidentiality and privacy, Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Research staff, Incarcerated, detained, or previously incarcerated individuals, People at risk for HIV, Prisons, United States, Qualitative (QL)

Festinger, D. S., Arabia, P. L., Croft, J. R., Dugosh, K. L., & Marlowe, D. B. (2008). Higher magnitude cash payments improve research follow-up rates without increasing drug use or perceived coercion.  Drug Alcohol Dependence, 96 (1-2), 128-135.
Research risks and benefitsVoluntariness and self-efficacyPeople at risk for HIV, People at risk for or with other STIs, People at risk for or with other substance abuse addictionsPeople who inject drugs, Clinical trials, Health-care facilitiesUnited StatesQuantitative (QT)

Fisher, C. B. (2010). Enhancing HIV Vaccine Trial Consent Preparedness Among Street Drug Users. Journal of Empirical Research on Human Research Ethics, 5 (2), 65-80.
Informed consent (adults), Research trust and mistrust, Adults (other), People at risk for HIV, People at risk for or with other STIs, People who inject drugs, Clinical trials,Neighborhoods, United StatesMixed methods (MM)

Fuchs, J., Durham, M., McLellan-Lemal, E., Vittinghoff, E., Colfax, G., Gurwith, M., & Buchbinder S. (2007). Negative social impacts among volunteers in an HIV vaccine efficacy trial. Journal of Acquired Immune Deficiency Syndromes, I, 362-368.
Research risks and benefits, Stigma, People at risk for HIV, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Guadamuz, T. E., Goldsamt, L. A., & Boonmongkon, P. (2014). Consent challenges for participation of young men who have sex with men in HIV prevention research in Thailand. Ethics and Behavior, 25 (2), 180-195.
Assent and self-consent (children and adolescents), Informed consent (adults)Research risks and benefitsStigmaPeople at risk for HIVSexual and gender minoritiesThailandQualitative (QL)

Groves, A. K., Maman, S., Msomi, S., Makhanya, N., & Moodley, D. (2010). The complexity of consent: Women’s experiences testing for HIV at an antenatal clinical in Durban, South Africa. AIDS Care, 22(5), 538-544.
Informed consent (adults), Voluntariness and self-efficacy, People at risk for HIV, Health-care facilities, South Africa, Qualitative (QL)

Kostick, K. M., Weeks, M., & Mosher, H. (2014). Participant and staff experiences in a peed-delivered HIV prevention with injection drug users. JERHRE, 9 (1), 6-18.
Clinical efficacyInvestigator practices and perspectives, Research misconductInvestigatorsPeople at risk for HIVPeople who inject drugsCommunity-engaged researchCommunity organizationsUnited StatesQualitative (QL)

Kyaddondo, D., Wanyenze, R., Kinsman, J., & Hardon, A. (2012). Home-based HIV counseling and testing: client experiences and perceptions in Eastern Uganda. BMC Public Health, 12966.
Confidentiality and privacy, Informed consent (adults)People at risk for HIV, People at risk for or with other STIsCommunity-engaged researchSurvey researchSouth AfricaMixed Methods (MM)

Lindegger, G., Milford, C., Slack, C., Quayle, M., Xaba, X., & Vardas, E. (2006). Beyond the checklist: Assessing understanding for HIV vaccine trial participation in South Africa. Journal of Acquired Immune Deficiency Syndromes, 43, 560-566.
Informed consent (adults), People at risk for HIV, Clinical trials, Health-care facilities, South Africa, Mixed Methods (MM)

Meyers, K., Metzger, D. S., Navaline, H., Woody, G. E., & McLellan, A. T. (1994). HIV vaccine trials: Will intravenous drug users enroll? American Journal of Public Health, 84(5), 761-766.
Voluntariness and self-efficacyPeople at risk for HIV, People who inject drugs, Clinical trials, Health-care facilitiesUnited StatesQuantitative (QT)

Obermeyer, C., Verhulst, C., & Asmar, K. (2014). Could you have said no? A mixed-methods investigation of consent to HIV tests in four African countries. Journal Of The International AIDS Society, 1718898.
Informed consent (adults), Voluntariness and self-efficacy, People at risk for HIV, People at risk for or with other STIs, Survey research, Health-care facilities, South AfricaMixed Methods (MM)

Oransky, M., Fisher, C. B., Mahadevan, M., & Singer, M. (2009). Barriers and opportunities for recruitment for nonintervention studies on HIV risk: Perspectives of street drug users. Substance Use& Misuse, 44, 1642-1659.
Research risks and benefitsResearch trust and mistrust, StigmaPeople at risk for HIV, People who inject drugsCommunity organizationsUnited StatesQualitative (QL)

Ott, M. A., Alexander, A. B., Lally, M., Steever, J. B., & Zimet, G. D. (2013). Preventive misconception and adolescents’ knowledge about HIV vaccine trials. Journal Of Medical Ethics: Journal Of The Institute Of Medical Ethics, 39(12), 765-771.
Assent and self-consent (children and adolescents), Therapeutic misconception,Adolescents, People at risk for HIV, People at risk for or with other STIs, Clinical trials,Health-care facilities, United StatesQualitative (QL)

Ott, M. A., Rosenberger, J. G., & Fortenberry, J. D. (2010). Parental permission and perceived research benefits in adolescent STI research.  Journal of empirical research on human research ethics: JERHRE, 5(2), 57-64.
Assent and self-consent (children and adolescents), Informed consent (adults), Research risks and benefits, Adolescents, Parents, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United StatesQualitative (QL)

Quirk, M. E., Godkin, M. A., & Schwenzfeier, E. (1993). Evaluation of two AIDS prevention interventions for inner-city adolescent and young adult women. American journal of preventive medicine.
Clinical efficacy, Adolescents, People at risk for HIV, People at risk for or with other STIs,Community-engaged research, Multimedia, Community organizations, Health-care facilities,United StatesMixed methods (MM)

Reed, J. L., Thistlethwaite, J. M., & Huppert, J. S. (2007). STI research: Recruiting an unbiased sample. Journal of Adolescent Health, 41, 14-18.
Assent and self-consent (children and adolescents), Research risks and benefits, Adolescents, People at risk for HIV, People at risk for or with other STIs, Health-care facilities, United States, Quantitative (QT)

Roberts, L. W., Geppert, C., McCarty, T., & Obenshain, S. S. (2003). Evaluating medical students skills in obtaining informed consent for HIV testing. Journal of General Internal Medicine, 18, 112-119.
Informed consent (adults), College students and young adults, People at risk for HIV, People at risk for or with other STIs, Educational institutions, United States, Quantitative (QT)

Scott, G. (2008). They got their program, and I got mine: A cautionary tale concerning the ethical implications of using respondent-driven sampling to study injection drug users. International Journal of Drug Policy, 19, 42-51.
Randomization, Research risks and benefits, People at risk for HIV, People who inject drugs, United States, Qualitative (QL)

Slomka, J., McCurdy, S., Ratliff, E. A., Timpson, S., & Williams, M. L. (2007). Perceptions of financial payment for research participation among African-American drug users in HIV studies. Journal of General Internal Medicine, 22, 1403-1409. Stirley, C. L. W., Callahan, C., & Cottler, L. B. (2008). Enrolling, retaining, and benefiting out-of-treatment drug users in intervention research. Journal of Empirical Research on Human Research Ethics, 3(3), 19-25.
Research risks and benefits, People at risk for HIV, People who inject drugs, Survey research, Neighborhoods, United States, Qualitative (QL)

Slomka, J., Ratliff, E. A., McCurdy, S. A., Timpson, S., & Williams, M.L. (2008). Decisions to participate in research: Views of underserved minority drug users with or at risk for HIV. AIDS Care, 20(10), 1224-1232.
Research risks and benefits, Voluntariness and self-efficacy, People at risk for HIV, People who inject drugs, Clinical trials, Health-care facilities, United States, Qualitative (QL)

Slomka, J., Ratliff, E. A., McCurdy, S., Timpson, S., & Williams, M. L. (2008). Perceptions of Risk in Research Participation Among Underserved Minority Drug Users. Substance Use & Misuse, 43(11), 1643-1655.
Research risks and benefits, People at risk for HIV, People who inject drugs, Clinical trials,Survey research, Community organizations, United StatesQualitative (QL)

Sugarman, J., Corneli, A., Donnell, D., Liu, T., Rose, S., Celentano, D., & … Metzger, D. (2011). Are there adverse consequences of quizzing during informed consent for HIV research?. Journal Of Medical Ethics, 37(11), 693-697.
Informed consent (adults), People at risk for HIV, People who inject drugs, Clinical trials,Health-care facilities, China, ThailandQuantitative (QT)

Swenson, R. R., Hadley, W. S., Houck, C. D., Fance, S. K., & Brown, L. K. (2011). Who accepts a rapid HIV antibody test? The role of race/ethnicity and HIV risk behavior among community adolescents. Journal of Adolescent Health, 48, 527-529.
Assent and self-consent (children and adolescents), Adolescents, People at risk for HIV, Survey research, Community organizations, United States, Quantitative (QT)

Uuskula, A., Johnston, L. G., Raag, M., Trummal, A., Talu, A., & Des Jarlais, D. C. (2010). Evaluating recruitment among female sex workers and injecting drug users at risk for HIV using respondent-driven sampling in Estonia. Journal of Urban Health: Bulletin of the New York Academy of Medicine, 87(2), 304-317.
Randomization, People at risk for HIV, People involved in sex work, People who inject drugs, Estonia, Mixed Methods (MM)

Vallely, A., Lees, S., Shagi, C., Kasindi, S., Soteli, S., Kavit, N., Hayes, R. J. (2010). How informed is consent in vulnerable populations? Experience using a continuous consent process during the MDP301 vaginal microbicide trial in Mwanza, Tanzania. BMC Medical Ethics, 11(10), doi: 10.1186/1472-6939-11-10.
Informed consent (adults), People at risk for HIV, Clinical trials, Community organizations, Tanzania, Qualitative (QL)

Yin, L., Zhang, Y., Qian, H., Rui, B., Zhang, L., Zhu, J., Shao, Y. (2008). Willingness of Chinese injection drug users to participate in HIV vaccine trials. Vaccine, 26, 762-768.
Voluntariness and self-efficacy, People at risk for HIV, People who inject drugs, Clinical trials, Neighborhoods, China, Quantitative (QT)

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