Survey research

Abdool Karim, Q., Abdool Karim, S. S., Coovadia, H. M., & Susser, M. (1998). Informed consent for HIV testing in a South
African hospital: Is it truly informed and truly voluntary?
. American Journal of Public Health, 88(4), 637-640.
Informed consent (adults), Voluntariness and self-efficacy, Adults (other), People living with HIV, People at risk for or with other STIs, Survey research, Health-care facilities, South AfricaQuantitative (QT)

Agnarson, A. M., et al. (2013). Antiretroviral Treatment Knowledge and Stigma – Implications for Programs and HIV Treatment Interventions in Rural Tanzanian Populations. PLoS ONE 8(1): e53993.
Informed consent (adults), Stigma, Adults (other), People at risk for HIV, People at risk for or with other STIs, People living with HIV, Survey research, Community-engaged researchCommunity organizations, TanzaniaQuantitative (QT)

Akkad, A., Jackson, C., Kenyon, S., Dixon-Woods, M., Taub, N., & Habiba, M. (2006). Patients’ perceptions of written consent: questionnaire study. BMJ: British Medical Journal, 333(7567), 528.
Informed consent (adults), Adults (other), Survey research, Health-care facilitiesEnglandQuantitative (QT)

Ashcraft, M. H., & Krause, J. A. (2007). Social and behavioral researchers’ experiences with their IRBs. Ethics & Behavior, 17(1), 1-17.
Investigator practices and perspectives, IRB practices and perspectives, Investigators,Research staff, Survey research, Educational institutions, United StatesMixed methods (MM)

Bell, K., & Salmon, A. (2011). What women who use drugs have to say about ethical research: findings of an exploratory qualitative study.  Journal of empirical research on human research ethics, 6, 84-98.
Research risks and benefitsResearch trust and mistrustPeople at risk for or with substance abuse addictionsPeople who inject drugsClinical trials, Survey researchEthics educationCommunity organizationsCanadaQualitative (QL)

Broaddus, M. R., Marsch, L. A., & Fisher, C. B. (2015). Risks and benefits of text-message-delivered and small-group-delivered sexual health interventions among African American women in the Midwestern United States. Ethics and Behavior, 25 (2), 146-168.
Confidentiality and privacy, Research risks and benefitsStigmaPeople at risk for HIV, People at risk for or with other STIs, Clinical trialsSurvey researchUnited StatesQuantitative (QT)

Chenneville, T., Lynn, V., Peacock, B., Turner, D., & Marhefka, S. L. (2015). Disclosure of HIV status among female youth with HIV. Ethics and Behavior, 25 (4), 314-331.
StigmaAdolescentsPeople living with HIV, Health-care facilitiesSurvey researchUnited States, Qualitative (QL)

Chiu, C. J., Menacho, L., & Young, S. D. (2014). The association between age and ethics-related issues in using social media for HIV prevention in Peru. Ethics and Behavior, 26 (2), 99-109.
Clinical efficacy, Research risks and benefitsPeople at risk for HIV, Online and social media research, Survey researchCommunity organizationsPeru

Cohn, J. M., Ginsburg, K. R., Kassam-Adams, N., & Fein, J. A. (2005). Adolescent decisional autonomy regarding participation in an emergency department youth violence interview. The American Journal of Bioethics, 5(5), 70-74.
Assent and self-consent (children and adolescents), Voluntariness and self-efficacy,Adolescents, Victims of interpersonal violence, Survey research, Health-care facilities, United StatesQuantitative (QT)

Couper, M. P., Singer, E., Conrad, F. G., & Groves, R. M. (2008). Risk of disclosure, perceptions of risk, and concerns about privacy and confidentiality as factors in survey participation. Journal of official statistics, 24(2), 255-275.
Confidentiality and privacy, Research risks and benefits, Research trust and mistrust, Adults (other), Survey research, United StatesQuantitative (QT)

Deng, J., Qian, M., Gan, Y., Hu, S., Gao, J., Huang, Z., & Zhang, L. (2015). Emerging practices of counseling and psychotherapy in China: ethical dilemmas in dual relationships. Ethics and Behavior, 26 (1), 63-86.
Multicultural competenceResearch misconductTherapeutic misconceptionAdults (other)Survey researchHealth-care facilitiesChinaQualitative (QL)

El-Wakeel, H., Taylor, G. J., & Tate, J. J. T. (2006). What do patients really want to know in an informed consent procedure? A questionnaire-based survey of patients in the Bath area, UK. Journal of medical ethics, 32(10), 612-616.
Informed consent (adults), Research risks and benefits, Adults (other), Clinical trials,Survey research, Health-care facilities, EnglandQuantitative (QT)

Ensign, J., & Ammerman, S. (2008). Ethical issues in research with homeless youths. Journal Of Advanced Nursing, 62(3), 365-372.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Research risks and benefits, Children, Investigators, Research staff, Survey research, Educational institutions, United States, Mixed methods (MM)
*Questionnaire available by request.

Fisher, C. B. (2011). Addiction research ethics and the Belmont principles: Do drug users have a different moral voice? Substance Use and Misuse, 46 (6), 728-741.
Confidentiality and privacyResearch misconductPeople at risk for or with other substance abuse addictionsPeople who inject drugsSurvey researchCommunity organizations, United StatesMixed methods (MM)

Fisher, C. B. (2003). Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research. Ethics and Behavior, 13(4), 302-331.
Assent and self-consent (children and adolescents), Confidentiality and privacy, Informed consent (adults), Research risks and benefits, Parents, Adolescents, Survey researchEducational institutions, United StatesQuantitative (QT)

Fisher, C. B., & Fyrberg, D. (1994). Participant partners: College students weigh the costs and benefits of deceptive research. American Psychologist,49(5), 417.
Deception, Research risks and benefits, Research trust and mistrust, College students and young adults, Survey research, Educational institutions, United StatesMixed methods (MM)

Fry, C. & Dwyer, R. (2001). For love or money? An exploratory study of why injecting drug users participate in research. Addiction, 96, 1319-1325.
Research risks and benefitsPeople at risk for or with other substance abuse addictionsPeople who inject drugsSurvey researchCommunity organizations, Australia, Mixed methods (MM)

Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical care, 1048-1053.
Confidentiality and privacy, Research trust and mistrust, Voluntariness and self-efficacy,Adults (other), Survey research, Health-care facilities, United States, Quantitative (QT)

Jui-An Pan, S., & Chou, C. (2014). Using a two-tier test to examine Taiwanese graduate students’ misunderstanding of responsible conduct of research. Ethics and Behavior, 25 (6), 500-527.
Investigator practices and perspectivesResearch misconductCollege students and young adultsResearch staff, Survey researchEducational institutions, TaiwanQuantitative (QT)

Kassam-Adams, N., & Newman, E. (2002). The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P). General Hospital Psychiatry, 24(5), 336-342.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trials,Survey research, Health-care facilities, United States, Qualitative (QL)

Kassam-Adams, N. Newman, E. (2005). Child and parent reactions to participation in clinical research. General Hospital Psychiatry, 27(1), 29-35.
Assent and self-consent (children and adolescents), Research risks and benefits, Research trust and mistrust, Children, Parents, Clinical trials, Survey research, Health-care facilities,United States, Qualitative (QL)

Kim, SYH, Holloway, R., Frank, S., Wilson, R., Kieburtz, K. (2008). Trust in early phase research: therapeutic optimism and protective pessimism. Medicine, Health Care, and Philosophy. 11(4), 393-401.
Informed consent (adults), IRB practices and perspectives, Research risks and benefits, Research trust and mistrust, Therapeutic misconception, IRB members, Clinical trials, Survey research, United States, Qualitative (QL)

Kyaddondo, D., Wanyenze, R., Kinsman, J., & Hardon, A. (2012). Home-based HIV counseling and testing: client experiences and perceptions in Eastern Uganda. BMC Public Health, 12966.
Confidentiality and privacy, Informed consent (adults)People at risk for HIV, People at risk for or with other STIsCommunity-engaged researchSurvey researchSouth AfricaMixed Methods (MM)

Mecca, J. T., Medeiros, K. E., Giorgini, V., Gibson, C., Mumford, M. D., & Connelly, S. Biases and compensatory strategies: the efficacy of a training intervention. Ethics and Behavior, 26 (2), 128-143.
Investigator practices and perspectivesResearch misconductCollege students and young adultsEthics education, Survey researchEducational institutionsUnited StatesQuantitative (QT) 

Obermeyer, C., Verhulst, C., & Asmar, K. (2014). Could you have said no? A mixed-methods investigation of consent to HIV tests in four African countries. Journal Of The International AIDS Society, 1718898.
Informed consent (adults), Voluntariness and self-efficacy, People at risk for HIV, People at risk for or with other STIs, Survey research, Health-care facilities, South AfricaMixed Methods (MM)

O’Lonergan, T. A., & Forster-Harwood, J. E. (2011). Novel approach to parental permission and child assent for research: Improving comprehension. Pediatrics, 127(5), 917-924.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Voluntariness and self-efficacy, Adolescents, Children, Ethics educationMultimedia, Survey research, Health-care facilities, United States, Quantitative (QT)

Phillips, J. C., & Russell, R. K. (1994). Research self-efficacy, the research training environment, and research productivity among graduate students in counseling psychology. The Counseling Psychologist, 22, 628-641.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Investigators, Ethics educationSurvey researchEducational institutions, United States, Quantitative (QT)

Sahin, Y. S., Iyigun, E., & Acikel, C. (2014). Validity and reliability of a Turkish version of the Modified Moral Sensitivity Questionnaire for student nurses. Ethics and Behavior, 25 (4), 351-359.
Clinical efficacyCollege students and young adultsEthics education, Survey researchHealth-care facilities, Turkey, Quantitative (QT)

Senn, C. Y., & Desmarais, S. (2006). A new wrinkle on a old concern: Are the new ethics review requirements for explicit warnings in consent forms affecting the results of sexuality. Canadian Journal of Human Sexuality.
Confidentiality and privacy, Informed consent (adults), College students and young adults,Clinical trials, Survey research, Educational institutionsCanada, Mixed methods (MM)

Shah, S., Whittle, A., Wilfond, B., Gensler, G., & Wendler, D. (2004). How do institutional review boards apply the federal risk and benefit standards for pediatric research?. JAMA: the journal of the American Medical Association,291(4), 476-482.
IRB practices and perspectives, Research risks and benefits, IRB members, Clinical trials,Survey research, Health-care facilities, United States, Quantitative (QT)

Slomka, J., McCurdy, S., Ratliff, E. A., Timpson, S., & Williams, M. L. (2007). Perceptions of financial payment for research participation among African-American drug users in HIV studies. Journal of General Internal Medicine, 22, 1403-1409. Stirley, C. L. W., Callahan, C., & Cottler, L. B. (2008). Enrolling, retaining, and benefiting out-of-treatment drug users in intervention research. Journal of Empirical Research on Human Research Ethics, 3(3), 19-25.
Research risks and benefits, People at risk for HIV, People who inject drugs, Survey research, Neighborhoods, United States, Qualitative (QL)

Slomka, J., Ratliff, E. A., McCurdy, S., Timpson, S., & Williams, M. L. (2008). Perceptions of Risk in Research Participation Among Underserved Minority Drug Users. Substance Use & Misuse, 43(11), 1643-1655.
Research risks and benefits, People at risk for HIV, People who inject drugs, Clinical trials,Survey research, Community organizations, United StatesQualitative (QL)

Swenson, R. R., Hadley, W. S., Houck, C. D., Fance, S. K., & Brown, L. K. (2011). Who accepts a rapid HIV antibody test? The role of race/ethnicity and HIV risk behavior among community adolescents. Journal of Adolescent Health, 48, 527-529.
Assent and self-consent (children and adolescents), Adolescents, People at risk for HIV, Survey research, Community organizations, United States, Quantitative (QT)

Willison, D. J., Keshavjee, K., Nair, K., Goldsmith, C., & Holbrook, A. M. (2003). Patients’ consent preferences for research uses of information in electronic medical records: interview and survey data. Bmj, 326(7385), 373.
Confidentiality and privacy, Informed consent (adults), Adult (other), Survey research,Health-care facilities, CanadaMixed methods (MM)

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