United States

Appelbaum, P. S., Lidz, C. W., & Klitzman, R. (2009). Voluntariness of consent to research: A preliminary empirical investigation. IRB: Ethics & Human Research, Nov. –Dec. 2009, 10-18.
Informed consent (adults), Voluntariness and self-efficacy, United States

Ashcraft, M. H., & Krause, J. A. (2007). Social and behavioral researchers’ experiences with their IRBs. Ethics & Behavior, 17(1), 1-17.
Investigator practices and perspectives, IRB practices and perspectives, Investigators,Research staff, Survey research, Educational institutions, United StatesMixed methods (MM)

Barnett, P. G., Hall, S. M., Haug, N. A., Sorensen, J. L., & Wong, W. (2008). Effect of incentives for medication adherence on health care use and costs in methadone patients with HIV. Drug Alcohol Dependence, 1, 115-121.
Research risks and benefitsPeople living with HIVPeople who inject drugsClinical trialsHealth-care facilitiesUnited StatesQuantitative (QT)

Basta, T. B., Stambaugh, T., & Fisher, C. B. (2014). Efficacy of an educational intervention to increase consent for HIV testing in rural Appalachia. Ethics and Behavior, 25 (2), 129-145.
Confidentiality and privacyInformed consent (adults)Research risks and benefitsPeople at risk for HIVPeople at risk for or with substance use addictionsClinical trials, Health-care facilities, United States 

Bieschke, K. J., Bishop, R. M., & Garcia, V. L. (1996). The utility of the research self-efficacy scale. Journal of Career Assessment, 4, 59-75.
Investigator practices and perspectives, Voluntariness and self-efficacyCollege students and young adults, Ethics education, Educational institutions, United StatesQuantitative (QT)

Broaddus, M. R., Marsch, L. A., & Fisher, C. B. (2015). Risks and benefits of text-message-delivered and small-group-delivered sexual health interventions among African American women in the Midwestern United States. Ethics and Behavior, 25 (2), 146-168.
Confidentiality and privacy, Research risks and benefitsStigmaPeople at risk for HIV, People at risk for or with other STIs, Clinical trialsSurvey researchUnited StatesQuantitative (QT)

Brody, H., Croisant, S. A., Crowder, J. W., & Banda, J. P. (2015). Ethical issues in patient-centered outcomes research and comparative effectiveness research: a pilot study of community dialogue. Journal of Empirical Research on Human Research Ethics, 10 (1), 22-30.
Multicultural competenceAdults (other)Community organizationsUnited StatesQualitative (QL)

Brooks, R. A., Newman, P. A., Duan, N., & Ortiz, D. J. (2007). HIV vaccine trial preparedness among Spanish-speaking Latinos in the US. AIDS Care, 19(1), 52-58.
Research risks and benefits, Research trust and mistrust, Stigma, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United States, Qualitative (QL)

Brown, E. J. & Hill, M. A. (2005). Perceptions of HIV risks and prevention strategies by rural and small city African Americans who use cocaine: Views from the inside. Issues in Mental Health Nursing, 26, 359-377.
Multicultural competence, Research risks and benefits, People at risk for HIV, People at risk for or with substance use addictions, Community-engaged research, Community organizations, Health-care facilities, United States, Qualitative (QL)

Calsyn, D. A., Burlew, A., Hatch-Maillette, M. A., Wilson, J., Beadnell, B., & Wright, L. (2012). Real men are safe-culturally adapted: Utilizing the Delphi process to revise Real Men Are Safe for an ethically diverse group of men in substance abuse treatment. AIDS Education And Prevention, 24(2), 117-131.
Multicultural competence, People at risk for HIV, People at risk for or with other STIs,Clinical Trials, United StatesQuantitative (QT)

Chenneville, T., Lynn, V., Peacock, B., Turner, D., & Marhefka, S. L. (2015). Disclosure of HIV status among female youth with HIV. Ethics and Behavior, 25 (4), 314-331.
StigmaAdolescentsPeople living with HIV, Health-care facilitiesSurvey researchUnited States, Qualitative (QL)

Cohn, J. M., Ginsburg, K. R., Kassam-Adams, N., & Fein, J. A. (2005). Adolescent decisional autonomy regarding participation in an emergency department youth violence interview. The American Journal of Bioethics, 5(5), 70-74.
Assent and self-consent (children and adolescents), Voluntariness and self-efficacy,Adolescents, Victims of interpersonal violence, Survey research, Health-care facilities, United StatesQuantitative (QT)

Couper, M. P., Singer, E., Conrad, F. G., & Groves, R. M. (2008). Risk of disclosure, perceptions of risk, and concerns about privacy and confidentiality as factors in survey participation. Journal of official statistics, 24(2), 255-275.
Confidentiality and privacy, Research risks and benefits, Research trust and mistrust, Adults (other), Survey research, United StatesQuantitative (QT)

Couper, M. P., & Singer, E. (2009). The role of numeracy in informed consent for surveys. Journal of empirical research on human research ethics: JERHRE,4(4), 17.
Confidentiality and privacy, Informed consent (adults), Adults (other), Online and social media research, Online web panel, United StatesQuantitative (QT)

Diviak, K. R., Curry, S. J., Emery, S. L., & Mermelstein, R. J. (2004). Human participants challenges in youth tobacco cessation research: researchers’ perspectives. Ethics & Behavior, 14(4), 321-334.
Assent and self-consent (children and adolescents), Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Adolescents, Investigators,People at risk for or with substance abuse addictions, Research staff, Clinical trials,Educational institutions, United StatesQualitative (QL)

DuBois, J. M., O’Leary, C. C., & Cottler, L. B. (2009).The attitudes of females in drug court toward additional safeguards in HIV prevention research. Prevention Science, 10(4), 345-352.
Informed consent (adults), Research risks and benefits, Adults (other), Incarcerated, detained, or previously incarcerated individuals, People at risk for HIV, People at risk for or with other STIs, People at risk for or with other substance abuse addictions, People who inject drugs, Community-engaged research, Prisons, United StatesQualitative (QL)

Eldridge, G. D., Robinson, R., Corey, S., Brems, C., & Johnson, M. E. (2012). Ethical challenges in conducting HIV/AIDS research in correctional settings. Journal of Correctional Health Care, 18(4), 309-318.
Confidentiality and privacy, Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Research staff, Incarcerated, detained, or previously incarcerated individuals, People at risk for HIV, Prisons, United States, Qualitative (QL)

Ensign, J., & Ammerman, S. (2008). Ethical issues in research with homeless youths. Journal Of Advanced Nursing, 62(3), 365-372.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Research risks and benefits, Children, Investigators, Research staff, Survey research, Educational institutions, United States, Mixed methods (MM)
*Questionnaire available by request.

Festinger, D. S., Arabia, P. L., Croft, J. R., Dugosh, K. L., & Marlowe, D. B. (2008). Higher magnitude cash payments improve research follow-up rates without increasing drug use or perceived coercion.  Drug Alcohol Dependence, 96 (1-2), 128-135.
Research risks and benefitsVoluntariness and self-efficacyPeople at risk for HIV, People at risk for or with other STIs, People at risk for or with other substance abuse addictionsPeople who inject drugs, Clinical trials, Health-care facilitiesUnited StatesQuantitative (QT)

Festinger, D. S., Ratanadilok, K., Marlowe, D. B., Dugosh, K. L., & Patapis, N. S. (2007). Neuropsychological functioning and recall of research consent information among drug court clients. Ethics & Behavior, 17(2), 163-186.
Informed consent (adults), People at risk for or with substance use addictions, Incarcerated, detained, or previously incarcerated individuals, United States, Quantitative (QT)

Fisher, C. B. (2011). Addiction research ethics and the Belmont principles: Do drug users have a different moral voice? Substance Use and Misuse, 46 (6), 728-741.
Confidentiality and privacyResearch misconductPeople at risk for or with other substance abuse addictionsPeople who inject drugsSurvey researchCommunity organizations, United StatesMixed methods (MM)

Fisher, C. B. (2003). Adolescent and Parent Perspectives on Ethical Issues in Youth Drug Use and Suicide Survey Research. Ethics and Behavior, 13(4), 302-331.
Assent and self-consent (children and adolescents), Confidentiality and privacy, Informed consent (adults), Research risks and benefits, Parents, Adolescents, Survey research,Educational institutions, United StatesQuantitative (QT)

Fisher, C. B. (2010). Enhancing HIV Vaccine Trial Consent Preparedness Among Street Drug Users. Journal of Empirical Research on Human Research Ethics, 5 (2), 65-80.
Informed consent (adults), Research trust and mistrust, Adults (other), People at risk for HIV, People at risk for or with other STIs, People who inject drugs, Clinical trials,Neighborhoods, United States, Mixed methods (MM)

Fisher, C. B., & Fyrberg, D. (1994). Participant partners: College students weigh the costs and benefits of deceptive research. American Psychologist,49(5), 417.
Deception, Research risks and benefits, Research trust and mistrust, College students and young adults, Survey research, Educational institutions, United StatesMixed methods (MM)

Fisher, C., Cea, C., Davidson, P., & Fried, A. (2006). Capacity of persons with mental retardation to consent to participate in randomized clinical trials. American Journal of Psychiatry, 163(10), 1813-1820.
Informed consent (adults), Adults with neurological disorders, Clinical trials, Community organizations, United StatesQuantitative (QT)

Fisher, C. B., Fried, A. L., & Feldman, L. G. (2009). Graduate socialization in the responsible conduct of research: A national survey on the research ethics training experiences of psychology doctoral students. Ethics & behavior, 19(6), 496-518.
Investigator practices and perspectives, Research misconduct, College students and young adults, Ethics education, Educational institutions, United StatesQuantitative (QT)

Fisher, C. B., Fried, A. L., Goodman, S. J., & Germano, K. K. (2009). Measures of mentoring, department climate, and graduate student preparedness in the responsible conduct of psychological research. Ethics & behavior, 19(3), 227-252.
Investigator practices and perspectives, Research misconduct, College students and young adults, Ethics education, Educational institutions, United StatesQuantitative (QT)

Fischer, B. A., & George, P. (2010). The investigator and the IRB: A survey of depression and schizophrenia researchers. Schizophrenia research, 122(1-3), 206.
Investigator practices and perspectives, IRB practices and perspectives, Adults with mental health disorders, Adults with neurological disorders, Investigators, IRB members, Research staff, Clinical trials, Educational institutions, United StatesQuantitative (QT)

Flynn, K. E., Weinfurt, K. P., Seils, D. M., Lin, L., Burnett, C. B., Schulman, K. A., & Meropol, N. J. (2008). Decisional conflict among patients who accept or decline participation in phase I oncology studies. Journal of empirical research on human research ethics: JERHRE, 3(3), 69-77.
Research risks and benefits, Voluntariness and self-efficacy, Adults with other health problems, Clinical trials, Health-care facilities, United StatesQuantitative (QT)

Forester, M., Kahn, J. H., & Hesson-McInnis, M. S. (2004). Factor structures of three measures of research self-efficacy. Journal of Career Assessment,12(1), 3-16.
Investigator practices and perspectivesVoluntariness and self-efficacyCollege students and young adultsInvestigators, Research staff, Ethics education, Educational institutions,United StatesQuantitative (QT)

Forman, R. F., Bovasso, G., Clark, C., McNicholas, L., Royer-Malvestuto, C., Weinstein, S., & Woody, G. (2002). Staff beliefs about drug abuse clinical trials.  Journal of Substance Abuse Treatment, 23 (1), 55-60.
Therapeutic misconceptionVoluntariness and self-efficacyAdults (other), Clinical trialsEthics educationHealth-care facilitiesUnited StatesQuantitative (QT)

Fuchs, J., Durham, M., McLellan-Lemal, E., Vittinghoff, E., Colfax, G., Gurwith, M., & Buchbinder S. (2007). Negative social impacts among volunteers in an HIV vaccine efficacy trial. Journal of Acquired Immune Deficiency Syndromes, I, 362-368.
Research risks and benefits, Stigma, People at risk for HIV, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Garber, M., Hanusa, B. H., Switzer, G. E., Mellors, J., & Arnold, R. M. (2007). HIV-infected African Americans are willing to participate in HIV treatment trials. Journal of General Internal Medicine, 22(1), 17-42.
Multicultural competence, Voluntariness and self-efficacy, People living with HIV, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical care, 1048-1053.
Confidentiality and privacy, Research trust and mistrust, Voluntariness and self-efficacy,Adults (other), Survey research, Health-care facilities, United StatesQuantitative (QT)

Hazen, R. A., Eder, M., Drotar, D., Zyzanski, S., Reynolds, A. E., Reynolds, C. P., …& Noll, R. B. (2010). A feasibility trial of a video intervention to improve informed consent for parents of children with leukemia. Pediatric blood & cancer, 55(1), 113-118.
Informed consent (adults), Parents, Clinical trials, Health-care facilities, United StatesQuantitative (QT)

Hickman, N. J., Prochaska, J.J., & Dunn, L. B. (2011). Screening for understanding of research in the inpatient psychiatry setting. Journal of Empirical Research on Human Research Ethics, 6(3), 65-72.
Informed consent (adults), Research risks and benefits, Adults with mental health disorders, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Jeste, D.V. et al (2007). A New Brief Instrument for Assessing Decisional Capacity for Clinical Research. Arch Gen Psychiatry, 64(8), 966-974.
Informed consent (adults), Adults with neurological disorders, Clinical trials, Health-care facilities, United StatesQuantitative (QT)

Joffe, S., Cook, E. F., Cleary, P. D., Clark, J. W., & Weeks, J. C. (2001). Quality of informed consent: a new measure of understanding among research subjects. Journal of the National Cancer Institute, 93(2), 139-147.
Informed consent (adults), Adults with other health problems, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Joffe, S., Cook, E. F., Cleary, P. D., Clark, J. W., & Weeks, J. C. (2001). Quality of informed consent in cancer clinical trials: a cross-sectional survey. Lancet, 358(9295), 1772-1777.
Informed consent (adults), Therapeutic misconception, Adults with health problems, Clinical trials, Health-care facilities, United StatesQuantitative (QT)

Kapp, S. A. (2000). Pathways to Prison: Life Histories of Former Clients of the Child Welfare and Juvenile Justice Systems. Journal of Sociology & Social Welfare, 27, 63-74.
Incarcerated, detained, or previously incarcerated individualsCommunity-engaged researchPrisonsUnited StatesQualitative (QL)

Kassam-Adams, N., & Newman, E. (2002). The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P). General Hospital Psychiatry, 24(5), 336-342.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trials,Survey research, Health-care facilities, United StatesQualitative (QL)

Kassam-Adams, N. Newman, E. (2005). Child and parent reactions to participation in clinical research. General Hospital Psychiatry, 27(1), 29-35.
Assent and self-consent (children and adolescents), Research risks and benefits, Research trust and mistrust, Children, Parents, Clinical trials, Survey research, Health-care facilities,United States, Qualitative (QL)

Keith-Spiegel, P. & Koocher, G. P. (2005). Institutional Review Board Researcher Assessment Tool (IRB-RAT).
Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Research staff, United States, Quantitative (QT)

Kiluk, B. D., Nich, C., & Carroll, K. M. (2010).Neurocognitive Indicators Predict Results of an Informed-Consent Quiz Among Substance-Dependent Treatment Seekers Entering a Randomized Clinical Trial. Journal of studies on alcohol and drugs, 71(5), 704-712.
Informed consent (adults), People at risk for or with substance use addictions, Clinical trials, Community organizations, United StatesQuantitative (QT)

Kim, SYH, Holloway, R., Frank, S., Wilson, R., Kieburtz, K. (2008). Trust in early phase research: therapeutic optimism and protective pessimism. Medicine, Health Care, and Philosophy. 11(4), 393-401.
Informed consent (adults), IRB practices and perspectives, Research risks and benefits, Research trust and mistrust, Therapeutic misconception, IRB members, Clinical trials, Survey research, United States, Qualitative (QL)

Kimberly, M. B., Hoehn, K. S., Feudtner, C., Nelson, R. M., & Schreiner, M. (2006). Variation in standards of research compensation and child assent practices: a comparison of 69 institutional review board–approved informed permission and assent forms for 3 multicenter pediatric clinical trials. Pediatrics, 117(5), 1706-1711.
Assent and self-consent (children and adolescents), Informed consent (adults), Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members,Children, Clinical trials, United States, Quantitative (QT)

Klitzman, R. (2008). Views of the process and content of ethical reviews of HIV vaccine trials among members of US institutional review boards and South African research ethics committees. Developing World Bioethics, 8(3), 207-218.
IRB practices and perspectives, Government officials and staff, IRB members, Clinical trials, Government agencies, South Africa, United StatesQuantitative (QT)

Koocher, G. P. (2002). Using the CABLES model to assess and minimize risk in research: control group hazards. Ethics & behavior, 12(1), 75-86.
Randomization, Research risks and benefits, Ethics education, United States

Kostick, K. M., Weeks, M., & Mosher, H. (2014). Participant and staff experiences in a peed-delivered HIV prevention with injection drug users. JERHRE, 9 (1), 6-18.
Clinical efficacyInvestigator practices and perspectives, Research misconductInvestigatorsPeople at risk for HIVPeople who inject drugsCommunity-engaged researchCommunity organizationsUnited StatesQualitative (QL)

Lakes, K. D., Vaughan, E., Jones, M., Burke, W., Baker, D., & Swanson, J. M. (2012). Diverse perceptions of the informed consent process: Implications for the recruitment and participation of diverse communities in the National Childrens Study. American Journal of Community Psychology, 49, 215-232.
Assent and self-consent (children and adolescents), Informed consent (adults), Multicultural competence, Research risks and benefits, Children, Adults (other), United States, Qualitative (QL)

Mecca, J. T., Medeiros, K. E., Giorgini, V., Gibson, C., Mumford, M. D., & Connelly, S. Biases and compensatory strategies: the efficacy of a training intervention. Ethics and Behavior, 26 (2), 128-143.
Investigator practices and perspectivesResearch misconductCollege students and young adultsEthics education, Survey researchEducational institutionsUnited StatesQuantitative (QT) 

Meyers, K., Metzger, D. S., Navaline, H., Woody, G. E., & McLellan, A. T. (1994). HIV vaccine trials: Will intravenous drug users enroll? American Journal of Public Health, 84(5), 761-766.
Voluntariness and self-efficacyPeople at risk for HIV, People who inject drugs, Clinical trials, Health-care facilitiesUnited StatesQuantitative (QT)

Miller, C. K., O’Donnell, D. C., Searight, H. R., & Barbarash, R. A. (1996). The Deaconess Informed Consent Comprehension Test: an assessment tool for clinical research subjects. Pharmacotherapy: The Journal of Human Pharmacology and Drug Therapy, 16(5), 872-878.
Informed consent (adults), Adults with other health problems, Clinical trials, Health-care facilities, United StatesQuantitative (QT)

Miller, V. A., Reynolds, W. W., Ittenbach, R. F., Luce, M. F., Beauchamp, T. L., & Nelson, R. M. (2009). Challenges in measuring a new construct: Perception of voluntariness for research and treatment decision making. Journal of empirical research on human research ethics: JERHRE, 4(3), 21-31.
Voluntariness and self-efficacy, Clinical Trials, Health-care facilities, United StatesQualitative (QL)

Miller, V. A., Reynolds, W. W., & Nelson, R. M. (2008). Parent–Child Roles in Decision Making About Medical Research. Ethics & Behavior, 18(2-3), 161-181.
Assent and self-consent (children and adolescents), Children, Parents, Clinical trials,Health-care facilities, United StatesMixed methods (MM)

Minniear, T. D., Gilmore, B., Arnold, S. R., Flynn, P. M., Knapp, K. M., & Gaur, A. H. (2009). Implementation of and barriers to routine HIV screening for adolescents. Pediatrics, 124, 1076-1083.
Assent and self-consent (children and adolescents), Adolescents, Health-care facilities, United States, Quantitative (QT)

Newman, E., Willard, T., Sinclair, R., & Kaloupek, D. (2001). Empirically supported ethical research practice: The costs and benefits of research from the participants’ view. Accountability in research, 8(4), 309-329.
Informed consent (adults), Research risks and benefits, College students and young adults,Clinical trials, Educational institutions, United StatesQuantitative (QT)

Oliver, J. M., Slashinski, M. J., Wang, T., Kelly, P. A., Hilsenbeck, S. G., & McGuire, A. L. (2011). Balancing the risks and benefits of genomic data sharing: genome research participants’ perspectives. Public Health Genomics, 15(2), 106-114.
Confidentiality and privacy, Informed consent (adults), Research risks and benefits,Research trust and mistrust, Adults (other), Parents, Clinical trials, Health-care facilities, United StatesMixed methods (MM)

O’Lonergan, T. A., & Forster-Harwood, J. E. (2011). Novel approach to parental permission and child assent for research: Improving comprehension. Pediatrics, 127(5), 917-924.
Assent and self-consent (children and adolescents), Investigator practices and perspectives, Voluntariness and self-efficacy, Adolescents, Children, Ethics education,Multimedia, Survey research, Health-care facilities, United States, Quantitative (QT)

Oransky, M., Fisher, C. B., Mahadevan, M., & Singer, M. (2009). Barriers and opportunities for recruitment for nonintervention studies on HIV risk: Perspectives of street drug users. Substance Use& Misuse, 44, 1642-1659.
Research risks and benefitsResearch trust and mistrust, StigmaPeople at risk for HIV, People who inject drugsCommunity organizationsUnited StatesQualitative (QL)

Ott, M. A., Alexander, A. B., Lally, M., Steever, J. B., & Zimet, G. D. (2013). Preventive misconception and adolescents’ knowledge about HIV vaccine trials. Journal Of Medical Ethics: Journal Of The Institute Of Medical Ethics, 39(12), 765-771.
Assent and self-consent (children and adolescents), Therapeutic misconception,Adolescents, People at risk for HIV, People at risk for or with other STIs, Clinical trials,Health-care facilities, United StatesQualitative (QL)

Ott, M. A., Rosenberger, J. G., & Fortenberry, J. D. (2010). Parental permission and perceived research benefits in adolescent STI research.  Journal of empirical research on human research ethics: JERHRE, 5(2), 57-64.
Assent and self-consent (children and adolescents), Informed consent (adults), Research risks and benefits, Adolescents, Parents, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United StatesQualitative (QL)

Palmer, B. W., Cassidy, E. L., Dunn, L. B., Spira, A. P., & Sheikh, J. I. (2008). Effective use of consent forms and interactive questions in the consent process. IRB: Ethics and Human Research, 30(2), 8-12.
Informed consent (adults), Voluntariness and self-efficacy, Adults with other health problems, Clinical trials, Health-care facilities, United StatesQualitative (QL)

Pearson, C. R., Parker, M., Fisher, C. B., & Moreno, C. (2014). Capacity Building from the Inside Out: Development and Evaluation of a CITI Ethics Certification Training Module for American Indian and Alaska Native Community Researchers. Journal Of Empirical Research On Human Research Ethics, 9(1), 46-57.
Multicultural competence, Research risks and benefits, Adults (other), Community-engaged research, Ethics education, Community organizations, United States, Mixed Methods (MM)

Phillips, J. C., & Russell, R. K. (1994). Research self-efficacy, the research training environment, and research productivity among graduate students in counseling psychology. The Counseling Psychologist, 22, 628-641.
Investigator practices and perspectives, Voluntariness and self-efficacy, College students and young adults, Investigators, Ethics educationSurvey researchEducational institutions, United States, Quantitative (QT)

Quirk, M. E., Godkin, M. A., & Schwenzfeier, E. (1993). Evaluation of two AIDS prevention interventions for inner-city adolescent and young adult women. American journal of preventive medicine.
Clinical efficacy, Adolescents, People at risk for HIV, People at risk for or with other STIs,Community-engaged research, Multimedia, Community organizations, Health-care facilities,United StatesMixed methods (MM)

Rajabiun, S., Mallinson, R. K., McCoy, K., Coleman, S., Drainoni, M., Rebholz, C., & Holbert, T. (2007). Getting me back on track: The role of outreach interventions in engaging and retaining people living with HIV/AIDS in medical care. AIDS Patient Care and STDs, 21(Supp. 1), S20-S29.
Clinical efficacy, Voluntariness and self-efficacy, People living with HIV, Health-care facilities, United States, Qualitative (QL)

Reed, J. L., Thistlethwaite, J. M., & Huppert, J. S. (2007). STI research: Recruiting an unbiased sample. Journal of Adolescent Health, 41, 14-18.
Assent and self-consent (children and adolescents), Research risks and benefits, Adolescents, People at risk for HIV, People at risk for or with other STIs, Health-care facilities, United States, Quantitative (QT)

Ripley, E., Macrina, F., Markowitz, M., & Gennings, C. (2010). Why do we pay? A national survey of investigators and IRB chairpersons. Journal of empirical research on human research ethics: JERHRE, 5(3), 43.
Investigator practices and perspectives, IRB practices and perspectives, Investigators, IRB members, Clinical trials, Educational institutions, United StatesQuantitative (QT)

Roberts, L. W., Geppert, C., McCarty, T., & Obenshain, S. S. (2003). Evaluating medical students skills in obtaining informed consent for HIV testing. Journal of General Internal Medicine, 18, 112-119.
Informed consent (adults), College students and young adults, People at risk for HIV, People at risk for or with other STIs, Educational institutions, United States, Quantitative (QT)

Roberts, L. W., Warner, T. D., Brody, J. L., Roberts, B., Lauriello, J., & Lyketsos,C. (2002). Patient and psychiatrist ratings of hypothetical schizophrenia research protocols: assessment of harm potential and factors influencing participation decisions. American Journal of Psychiatry, 159(4), 573-584.
Informed consent (adults), Adults (other), Adults with neurological disorders, Clinical trials,Health-care facilities, United StatesMixed methods (MM)

Roessler, B. J., Steneck, N. H., & Connally, L. (2015). The MICHR genomic DNA BioLibrary: an empirical study of the ethics of biorepository development. Journal of Empirical Research on Human Research Ethics, 10 (1), 37-48.
Informed consent (adults)Research risks and benefitsAdults (other)Health-care facilitiesUnited StatesQuantitative (QT) 

Rojas, N. L., Sherrit, L., Harris, S., & Knight, J. R. (2008). The role of parental consent in adolescent substance use research. Journal of Adolescent Health, 42, 192-197.
Assent and self-consent (children and adolescents), Adolescents, People at risk for or with substance use addictions, Clinical trials, Health-care facilities, United States, Quantitative (QT)

Rubright, J. D., Cary, M. S., Karlawish, J. H., & Kim, S. Y. (2011). Measuring how people view biomedical research: Reliability and validity analysis of the Research Attitudes Questionnaire. Journal of Empirical Research on Human Research Ethics, 6(1), 63-68.
Confidentiality and privacy, Research trust and mistrust, Stigma, Adults (other), Online and social media research, Online web panel, United StatesQuantitative (QT)

Scott, G. (2008). They got their program, and I got mine: A cautionary tale concerning the ethical implications of using respondent-driven sampling to study injection drug users. International Journal of Drug Policy, 19, 42-51.
Randomization, Research risks and benefits, People at risk for HIV, People who inject drugs, United States, Qualitative (QL)

Shah, S., Whittle, A., Wilfond, B., Gensler, G., & Wendler, D. (2004). How do institutional review boards apply the federal risk and benefit standards for pediatric research?. JAMA: the journal of the American Medical Association,291(4), 476-482.
IRB practices and perspectives, Research risks and benefits, IRB members, Clinical trials,Survey research, Health-care facilities, United StatesQuantitative (QT)

Singer, E., & Couper, M. P. (2008). Do incentives exert undue influence on survey participation? Experimental evidence. Journal of empirical research on human research ethics: JERHRE, 3(3), 49-56.
Research risks and benefits, Adults (other), Online and social media research, Online web panel, United StatesQuantitative (QT)

Stevenson, H.C. & White, J. J. (1994). AIDS prevention struggles in ethnocultural neighborhoods: why research partnerships with community based organizations can’t wait. AIDS Education Prevention, April 6(2), 126-139.
Community Advisory Board practices, Community Advisory Board, Community-engaged research, Neighborhoods, United StatesMixed methods (MM)

Slomka, J., McCurdy, S., Ratliff, E. A., Timpson, S., & Williams, M. L. (2007). Perceptions of financial payment for research participation among African-American drug users in HIV studies. Journal of General Internal Medicine, 22, 1403-1409. Stirley, C. L. W., Callahan, C., & Cottler, L. B. (2008). Enrolling, retaining, and benefiting out-of-treatment drug users in intervention research. Journal of Empirical Research on Human Research Ethics, 3(3), 19-25.
Research risks and benefits, People at risk for HIV, People who inject drugs, Survey research, Neighborhoods, United States, Qualitative (QL)

Slomka, J., Ratliff, E. A., McCurdy, S. A., Timpson, S., & Williams, M.L. (2008). Decisions to participate in research: Views of underserved minority drug users with or at risk for HIV. AIDS Care, 20(10), 1224-1232.
Research risks and benefits, Voluntariness and self-efficacy, People at risk for HIV, People who inject drugs, Clinical trials, Health-care facilities, United States, Qualitative (QL)

Slomka, J., Ratliff, E. A., McCurdy, S., Timpson, S., & Williams, M. L. (2008). Perceptions of Risk in Research Participation Among Underserved Minority Drug Users. Substance Use & Misuse, 43(11), 1643-1655.
Research risks and benefits, People at risk for HIV, People who inject drugs, Clinical trials,Survey research, Community organizations, United StatesQualitative (QL)

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Assent and self-consent (children and adolescents), Adolescents, People at risk for HIV, Survey research, Community organizations, United States, Quantitative (QT)

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Confidentiality and privacy, People living with HIV, Community-engaged research,Community organization, United States, Qualitative (QL)

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Randomization, Therapeutic misconception, People at risk for or with substance use addictions, Clinical trials, Health-care facilities, United States, Qualitative (QL)

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Assent and self-consent (children and adolescents), Research trust and mistrust, Stigma,Community-engaged research, Community organizations, United StatesMixed methods (MM)

Wirshing, D. A., Wirshing, W. C., Marder, S. R., Liberman, R. P., & Mintz, J. (1998). Informed consent: assessment of comprehension. American Journal of Psychiatry, 155(11), 1508-1511.
Informed consent (adults), Adults with neurological disorders, Health-care facilities, United StatesQuantitative (QT)

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