Research trust and mistrust

Bell, K., & Salmon, A. (2011). What women who use drugs have to say about ethical research: findings of an exploratory qualitative study.  Journal of empirical research on human research ethics, 6, 84-98.
Research risks and benefits, Research trust and mistrust, People at risk for or with substance abuse addictions, People who inject drugs, Clinical trials, Survey research, Ethics education, Community organizations, Canada, Qualitative (QL)

Brooks, R. A., Newman, P. A., Duan, N., & Ortiz, D. J. (2007). HIV vaccine trial preparedness among Spanish-speaking Latinos in the US. AIDS Care, 19(1), 52-58.
Research risks and benefits, Research trust and mistrust, Stigma, People at risk for HIV, Clinical trials, Community organizations, Health-care facilities, United States, Qualitative (QL)

Couper, M. P., Singer, E., Conrad, F. G., & Groves, R. M. (2008). Risk of disclosure, perceptions of risk, and concerns about privacy and confidentiality as factors in survey participation. Journal of official statistics, 24(2), 255-275.
Confidentiality and privacy, Research risks and benefits, Research trust and mistrust, Adults (other), Survey research, United States, Quantitative (QT)

Fisher, C. B. (2010). Enhancing HIV Vaccine Trial Consent Preparedness Among Street Drug Users. Journal of Empirical Research on Human Research Ethics, 5 (2), 65-80.
Informed consent (adults), Research trust and mistrust, Adults (other), People at risk for HIV, People at risk for or with other STIs, People who inject drugs, Clinical trials,Neighborhoods, United States, Mixed methods (MM)

Fisher, C. B., & Fyrberg, D. (1994). Participant partners: College students weigh the costs and benefits of deceptive research. American Psychologist,49(5), 417.
Deception, Research risks and benefits, Research trust and mistrust, College students and young adults, Survey research, Educational institutions, United States, Mixed methods (MM)

Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical care, 1048-1053.
Confidentiality and privacy, Research trust and mistrust, Voluntariness and self-efficacy,Adults (other), Survey research, Health-care facilities, United States, Quantitative (QT)

Kassam-Adams, N. Newman, E. (2005). Child and parent reactions to participation in clinical research. General Hospital Psychiatry, 27(1), 29-35.
Assent and self-consent (children and adolescents), Research risks and benefits, Research trust and mistrust, Children, Parents, Clinical trials, Survey research, Health-care facilities, United States, Qualitative (QL)

Kim, SYH, Holloway, R., Frank, S., Wilson, R., Kieburtz, K. (2008). Trust in early phase research: therapeutic optimism and protective pessimism. Medicine, Health Care, and Philosophy. 11(4), 393-401.
Informed consent (adults), IRB practices and perspectives, Research risks and benefits, Research trust and mistrust, Therapeutic misconception, IRB members, Clinical trials, Survey research, United States, Qualitative (QL)

Oliver, J. M., Slashinski, M. J., Wang, T., Kelly, P. A., Hilsenbeck, S. G., & McGuire, A. L. (2011). Balancing the risks and benefits of genomic data sharing: genome research participants’ perspectives. Public Health Genomics, 15(2), 106-114.
Confidentiality and privacy, Informed consent (adults), Research risks and benefits,Research trust and mistrust, Adults (other), Parents, Clinical trials, Health-care facilities, United States, Mixed methods (MM)

Oransky, M., Fisher, C. B., Mahadevan, M., & Singer, M. (2009). Barriers and opportunities for recruitment for nonintervention studies on HIV risk: Perspectives of street drug users. Substance Use& Misuse, 44, 1642-1659.
Research risks and benefits, Research trust and mistrust, Stigma, People at risk for HIV, People who inject drugs, Community organizations, United States, Qualitative (QL)

Rubright, J. D., Cary, M. S., Karlawish, J. H., & Kim, S. Y. (2011). Measuring how people view biomedical research: Reliability and validity analysis of the Research Attitudes Questionnaire. Journal of Empirical Research on Human Research Ethics, 6(1), 63-68.
Confidentiality and privacy, Research trust and mistrust, Stigma, Adults (other), Online and social media research, Online web panel, United States, Quantitative (QT)

Traube, D. E., et al. (2013). African American Children’s Perceptions of HIV-Focused Community-Based Participatory Research. Journal of Empirical Research on Human Research Ethics, 8(1), 79-90.
Assent and self-consent (children and adolescents), Research trust and mistrust, Stigma,Community-engaged research, Community organizations, United States, Mixed methods (MM)